Guestbook (July 2003 - Jun 2004)

From:	jennmarie@bis.midco.net
Date:	Sun Jun 27 04:58:13 2004
URL:	www.caringbridge.org/nd/allison
Message:	Sophie looks Wonderful! Happy belated second birthday my friend! I am so happy that Sophie is doing so well! Her engraftment and enzyme levels are great! THinking of you all! Please give that little beauty a big hug from us! Love, Jennifer & Allison

From:
Date:	Fri Jun 25 21:11:14 2004
URL:	http://
Message:

From:	kellywaddell@hotmail.com
Date:	Fri Jun 25 17:40:15 2004
URL:	http://www.geocities.com/calebwaddell
Message:	It's a little late, but Happy Birthday Sophie! I'm so glad that you are doing well. You and all of the Hurler Babies remain in my thoughts and prayers. My little guy actually goes for his 2 year post transplant studies this Monday, Tues. and Wed. Wow! Keep up the good work angel girl.

From:	Rachel
Date:	Wed Jun 23 20:39:13 2004
URL:
Message:	Dear sophie I am glad you are recovering well. Also I hope you had a fantastic birthday at the beach. I am eight now. Lots of love from Rachel. XXXXXXXXXXXXX

From:	arhimes@msn.com
Date:	Mon Jun 21 23:11:45 2004
URL:	http://www.caringbridge.com/page/andrewh
Message:	I forgot to say a big HAPPY BIRTHDAY!!! Hope you had a great day. Love, Anne

From:	arhimes@msn.com
Date:	Mon Jun 21 22:52:43 2004
URL:	http://www.caringbridge.org/page/andrewh
Message:	Well I can say that the beach did nothing to calm Sophie's hair. What a cutie. I am jealous, we still can't go to the beach. I think Hannah would sell Andrew if she thought it would get us there. We used to go every year and now haven't for 3 years. Boy once you guys got started in the right direction, you really got going!! Sophie looks great and no restrictions. I can't wait until we can all go to church again and not feel guilty. Keep the good news coming. Love, Anne

From:	Pat, Jan, Zoe and Joy
Date:	Mon Jun 21 21:51:29 2004
URL:	http://
Message:	We were so pleased to see you all at the weekend, it was just lovely to see you all after nearly a year. I have to say that Tina and Padraic have done a very good job, both children are a delight to be with. It is hard watching and talking, sometimes you need to be there, thank goodness that the restrictions have been lifted and lets hope that this will be the first of many visits. Take care, Love from us lot :-))) xxxxx

From:	Kate & Tony
Date:	Mon Jun 21 12:44:36 2004
URL:
Message:	Hi Sophie - hope you had a very happy 2nd birthday. Your new hair looks wonderful. You're such a special little girl with a very special mummy & daddy and big sister - you're doing so well. Love from Kate, Tony, Anna, Rosie & Alex xxxx

From:	labro4will@yahoo.co.uk
Date:	Sat Jun 19 19:51:31 2004
URL:	http://
Message:	I hope you had a very happy birthday! Congratulations on all the great results Sophie love Laura (mum to Will MPS2)

From:	Lisa Post ltjpost@cox.net
Date:	Fri Jun 18 04:59:23 2004
URL:	http://
Message:	Wow! That is quite the head of hair!!! FANTASTIC!!! And you know what else is fantastic? Her engraftment and enzyme levels!! GREAT JOB, SOPHIE!!!! Love, Lisa Post

From:	Lisa Post ltjpost@cox.net
Date:	Sat Jun 12 02:46:39 2004
URL:	http://
Message:	Happy 2nd Birthday, Miss Sophie!!! What a great celebration!

From:	mmchick@comcast.net
Date:	Fri Jun 11 03:38:13 2004
URL:	http://www.Mighty-Max.com
Message:	Happy Birthday beautiful Sophie! Love, The Ciacciarellis

From:	t.martin40@ntlworld.com
Date:	Fri Jun 11 00:47:59 2004
URL:	http://
Message:	Our friends son has recently been diagnosed with hurlers. Your website will help them and many others to understand what they are going through. You are amazing and must make your parents VERY proud. Take care and keep well

From:	mauerstrasse13@freenet.de
Date:	Wed Jun 9 21:55:40 2004
URL:	http://
Message:	Dear Sophie, HAPPY BIRTHDAY!! Glad to hear you enjoyed your day out at the seaside. Lots of love to you, your big sister and mum and dad. Ellen, Michael, Emma and Paul.

From:	Steve, Hazel and Mimi
Date:	Tue Jun 8 21:29:17 2004
URL:	http://
Message:	Dear Sophie, Happy Birthday to you! Hope you had a wonderful day at the sea-side. Lots of Love from Steve, Hazel and Mimi XXX

From:	judithsween@aol.com
Date:	Tue Jun 8 16:58:10 2004
URL:	http://www.mighty-max.com
Message:	Happy Birthday to you,Happy Birthday to you,Happy Birthday Dear Sophie,Happy Birthday to you!!!Hope that you can hear us singing from across the sea...Much love on this Special Day...Mighty-Max's Granny and family

From:	harrisangela@btinternet.com
Date:	Tue Jun 8 11:55:21 2004
URL:	http://
Message:	Happy Birthday Sophie!!!!!!! It was lovely to see you all at clinic last week, Sophie looked gorgeous. Hope you had a great day at the beach Lots of Love Angela & Alex

From:	michaela@centralins.com.au
Date:	Tue Jun 8 10:30:12 2004
URL:	http://
Message:	Happy birthday Sophie, another Gemini in the family no wonder you keep your family on their toes. I hope you enjoyed your day at the beach. It is good to see things are looking up again, I am sure that you will overcome all obstacles in your path you are an amazing little girl. Love Michaela

From:	arhimes@msn.com
Date:	Tue Jun 8 02:46:27 2004
URL:	http://www.caringbridge.com/page/andrewh
Message:	I love the pictures. You are just darling Sophie!! I was just catching up with your journal and was surprised to see my words. I am so glad they were helpful. I never know. I try so hard to help but everyone of us is different. I know Sophie will make loads of progress in all areas with all the love she is getting. Love, Anne

From:	Auntie Joan
Date:	Sun Jun 6 22:42:36 2004
URL:	http://
Message:	Hello to Sophie, Amy, Padraic and Tina, sorry for not contacting you sooner but I had a virus in my computer and was afraid to spread it. Hope you had a good day at the beach and you all seem to be in the same fighting form as when I last read your news. We are all praying very hard for both Sophie and all the family and hope we can pass on some of our strength. Love from all in Ireland Joan

From:	Pat, Jan, Zoe and Joy
Date:	Sun Jun 6 10:18:07 2004
URL:	http://
Message:	Lovely photographs, I like the new hair style. I can't help but smile thinking of Padraic and Tina sitting in the garden surrounded by piles of wooden poles and screws with an instruction leaflet that was probably the size of a matchbox trying to build the new swing - well done for beating it though, Sophie and Amy will have many happy hours playing on it.

From:	Lisa Post ltjpost@cox.net
Date:	Sat Jun 5 21:11:03 2004
URL:	http://
Message:	Love the new pics! Sophie is just a doll!

From:	judithsween@aol.com
Date:	Fri Jun 4 17:15:02 2004
URL:	http://www.mighty-max.com
Message:	Sweet Sweet Sophie, You are just sooo cute!! I love the new pictures and I laughed out loud at the one with Daddy.Glad to hear that you are keeping everyone busy with your antics. Sending Love,Hugs,and Kisses from across the sea...Mighty-Max's Granny and Family

From:	aaronsmom1027@sbcglobal.net
Date:	Wed Jun 2 19:29:53 2004
URL:	http://caringbridge.org/il/aaronathy
Message:	The new pictures are too cute!!! She looks like a doll lying on her daddy's lap!!! I too hope you can lift some of the restrictions and get back to a "normal" life. Last summer we couldn't take Aaron swimming or even outside if someone was cutting their grass. This summer is gonna ROCK!!!! XOXO

From:	Lisa Post ltjpost@cox.net
Date:	Tue Jun 1 00:22:09 2004
URL:	http://
Message:	As hard as it is, try not to let Sophie's vision impairment get you down or discourage you. Sophie is a phenomenal little girl and I have no doubt that she will compensate and do extraordinary things despite this new development. God Bless!

From:	Steve, Hazel and Mimi
Date:	Mon May 31 22:50:58 2004
URL:	http://
Message:	Tina and Padraic, we have been keeping up to date with the latest developments on your website. The strength you have all shown in the past is truly amazing and it is this that will surely get you through whatever the future holds for you. We are thinking of you and we are here for you should you need us

From:	rossandra@bigpond.com
Date:	Sun May 30 12:46:28 2004
URL:	http://
Message:	Hello Sophie and family, Sorry to read of the eye problems but am sure the Lord will see Sophie is compensated in many other ways, and particularly with the wonderful parents and sister she has. God Bless You All Sandra

From:	judithsween@aol.com
Date:	Sat May 22 14:29:01 2004
URL:	http://www.mighty-max.com
Message:	Hi Sweet Sophie, Just wanted to tell you that I still check on you everyday and that we continue to pray for you daily.Please ask Mommy and Daddy to give you a kiss and hug from Mighty-Max's Granny and Family.You are an amazing girl and I have faith that you will continue to amaze us.

From:	Angela
Date:	Fri May 21 23:28:46 2004
URL:
Message:	Hi padraic & Tina, Sorry to hear the news about Sophie's eye-sight. Remember that every strength can become a weakness if taken to extreme. But also, every weakness can become a strength if it is loved and supported. I know that, with God's help, you will give Sophie all the love and support you can, so that in the years to come she will be able to make strengths out of her weaknesses. I pray that you will always have the strength to support Sophie and Amy in all they do. But also that, when you run out of strength, help will always turn up when you least expect it. Love Angela xx

From:	kellywaddell@hotmail.com
Date:	Fri May 21 21:06:01 2004
URL:	http://www.geocities.com/calebwaddell
Message:	I am truely sorry for your sad news. We will be praying extra hard for you all.

From:	arhimes@msn.com
Date:	Thu May 20 17:01:43 2004
URL:	http://www.caringbridge.com/page/andrewh
Message:	I am so sorry for your devastating news. I hope that the effects may be more minimal than they seem now. Sophie's body is an amazing thing and it may overcome still more yet and surprise everyone. When going to an appointment where I fear to hear bad news, I always try to remeber that I will walk our with the same sweet baby I walked it with, no matter what they tell me. We all want the best for our children and we all ache for them to be "normal" but I know you will help Sohie overcome what ever comes to her. Love, Anne

From:	Alison
Date:	Thu May 20 11:10:54 2004
URL:	http://
Message:	Tina & Padraic, I'm so sorry to read about Sophie's eyesight, it is a lot for you to deal with, especially after the news about her back. It makes me so angry to think about all she has had to go through because of the MPS. However, Sophie is still the same beautiful happy little girl that everyone loves, and you are really wonderful parents to her. Love, Alison, Peter, Ellie & Stacey

From:	1234@amulex.com
Date:	Thu May 20 02:55:58 2004
URL:	http://
Message:	Hi Tina, Please do not be discouraged. My dad suffered from West Nile disease last year at the age of 78. This virus causes encephalitis which of course causes brain damage and even death. Drs were very discouraging, but nothing was going to break my mother or my determination. Well, I am please to say that this now 79 year old can once again walk, talk clearly, tell time, read the newspaper and do math. It has taken a while, but it can happen. Leave it in God's hands and He will take care. Debbie

From:	Dana Slevin (Mighty Max's Aunt)
Date:	Tue May 18 02:56:57 2004
URL:	http://www.mighty-max.com
Message:	Hello all! I haven't written in awhile despite the fact that I always check in on beautiful Sophie. So sorry to read that there will be surgery on the horizon after all that the sweet girl has been through. You continue to be in our thoughts and prayers!

From:	kellywaddell@hotmail.com
Date:	Mon May 17 23:34:04 2004
URL:	http://www.geocities.com/calebwaddell
Message:	Checking in on Sophie. I'm so sorry that she will be facing back surgery so soon. Our ortho doc says that Caleb could have to have back surgery at any given time over the next year. He's holding off as long as possible, but could be as early as June. We'll continue to pray for Sophie!

From:	Alison
Date:	Mon May 17 14:15:58 2004
URL:	http://
Message:	Tina & Padraic, It certainly would have been nice to be able to enjoy some of the summer before getting into the next major surgery. It seems very hard, but I suppose the sooner the better for Sophie. Its lucky she has such a strong loving family around her. Thinking of you as always, Alison, Peter, Ellie & Stacey

From:	arhimes@msn.com
Date:	Mon May 17 12:43:18 2004
URL:	http://www.caringbridge.com/page/andrewh
Message:	I am so sorry about Sophie's back getting worse. It does seem sometimes that one worry is replaced by another but she is so tough that I am sure that she will work through this too. I love to hear how well she is doing in all other ways. Hannah saw Sophie's picture up on the computer this morning before she headed off to school and asked how she was. I think after losing Niki, she is hestitant to ask. Love, Anne

From:	Cathy Peters
Date:	Sun May 9 20:09:52 2004
URL:	http://www.caringbridge.org/canada/isobel
Message:	Hi Sophie! Just wanted to say HI! I am so happy with all of your progress- a mature immine system- that is great!!! Take Care and say Happy Mother's Day to your mom!!

From:	The Slawson Gang
Date:	Sat May 8 18:40:39 2004
URL:	http://www.caringbridge.com/ca/slawson
Message:	Wishing you a very happy Mother's Day!!!!!! Love and Hugs, Tami

From:	katilynnsmom@Yahoo.com
Date:	Fri May 7 05:38:30 2004
URL:	http://www.caringbridge.org/ky/katilynnsmom
Message:	hi my name is kathy and my daughter katilynn has hurlers we found out this past september and is taking the enzmye replacement treatment.please feel free to look at her web page thank u

From:	Alison
Date:	Wed May 5 13:54:42 2004
URL:	http://
Message:	Sophie, Glad to hear you're able to ditch some more of your medicines, it sounds like another big step forward - maybe you'll be able to come out to meet your friends again soon. Love, Alison & family

From:	Jan., Pat, Zoe and Joy
Date:	Mon May 3 19:52:43 2004
URL:	http://
Message:	Secret's out ... and on Saturday Tina was 1 year older. We were so pleased to hear about Sophie bathtime, it is horrible when you are doing essential things for your kids and they are upset and/or hurt about it. Bathtime (when enjoyed) can be a lovely time - it sounds like you have many of these ahead of you. Cheers from us lot.

From:	Kate & Tony
Date:	Fri Apr 30 23:15:58 2004
URL:
Message:	Sophie, lovely new piccies of you and Amy - your new hair is just wonderful. Have a great weekend hopefully playing outside. Kate, Tony, Anna, Rosie & Alex xx

From:	thom8493@bellsouth.net
Date:	Thu Apr 29 14:56:16 2004
URL:	http://
Message:	Hi. My grandson Jonathan will receive his bone transfplant tomorrow. We are so hopeful. We pray hard daily for whatever the road ahead brings our way. It sure helps to read the latest news from other children. We will keep Sophie in our prayers.

From:	TatevR@gosh.nhs.uk
Date:	Thu Apr 29 00:17:08 2004
URL:	http://
Message:	Dear Sophie and family, I am working nights this week ,and the Fox girls gave me your website address. So sorry to hear about your trip to PICU, but glad to hear that it was brief and that you are much better. Well done with your CD4 count! Your photos are wonderful - I can't believe how pretty you have grown since I was looking after you! Lots of love to you and all the family, Ruth (Registrar on BMT Oct-Dec 03)

From:	GACimarrusti@AOL.com
Date:	Wed Apr 28 18:08:14 2004
URL:	http://
Message:	Sophie, We are so glad to hear you are enjoying the wonderful out-doors!! Tony the Tigre sends a big HUG!! Love, Gina, Joe, Gianna and Anthony

From:	judithsween@aol.com
Date:	Tue Apr 27 15:28:58 2004
URL:	http://www.mighty-max.com
Message:	Dear Sophie, So glad to hear that you are eating Wotsits again!!! You made my day!! sending all our love and prayers from Chicago...Mighty-Max's Granny

From:	angeladawnsummers@yahoo.com
Date:	Tue Apr 27 03:21:44 2004
URL:	http://www.jonathansjourney.com
Message:	We have a child with Hurlers. Me and my wife are keeping Sophie and her family in our prayers. I added your site to Jonathans site, so others can pray for you too.

From:	Alison
Date:	Mon Apr 26 23:01:57 2004
URL:	http://
Message:	Sophie, Wonderful to hear that you are doing so well, and that the Wotsits have finally made a comeback. All we can say is 'Hooray for Sophie' Love, Alison, Peter, Ellie & Stacey

From:	Pat, Zoe, Joy and the Ancient one:-)
Date:	Wed Apr 21 18:58:56 2004
URL:	http://
Message:	You look just lovely with those curls, you are an official curly wurly girly girl - as Zoe and Joy would say. I am so pleased that you are home. Love from us lot.

From:	gcimarru@riroe.k12.il.us
Date:	Wed Apr 21 18:42:33 2004
URL:	http://
Message:	Sophie looks wonderful in the pictures! I am so happy she is able to enjoy the great outdoors! love, Gina(Tony the Tigre's mom)

From:	michaela@centralins.com.au
Date:	Wed Apr 21 02:23:39 2004
URL:	http://
Message:	What gorgeous curls Sophie, you make me quite jealous. I love the new pictures and am so glad to hear you are back at home. Love to all Michaela

From:	michelle.flaherty@boimail.com
Date:	Mon Apr 19 18:26:31 2004
URL:	http://
Message:	Hi to all, hope everything goes well over the next few days. Looking good with those amazing curls, Sophie! Take care of yourselves. Michelle, John & James

From:	Martyn
Date:	Mon Apr 19 11:06:45 2004
URL:	http://
Message:	Saw the latest photos, and Sophie's looking great. I see Padraic got the new car he was thinking about! Best of everything to you all. Martyn

From:	Alison & Oscar Sparrowhawk
Date:	Sun Apr 18 20:59:41 2004
URL:	http://
Message:	Can't believe what a week you've had! But great you are home so soon. My Hollie had a couple of fits when she was 18 months due to high temps, never had any more so hope you are as lucky! I will phone you soon & catch up! Love to all Alson

From:	Alison & family
Date:	Sun Apr 18 17:38:45 2004
URL:	http://
Message:	Sophie, Glad to hear you're home again and enjoying the garden. Your curly hair is gorgeous too. Love to Mum, Dad and Amy.

From:	Lisa Post ltjpost@cox.net
Date:	Fri Apr 16 04:26:25 2004
URL:	http://
Message:	Oh, Sophie, I didn't know you went through so much the last few days! I hope your fever is gone by now and you are feeling alot better. I know how scary febrile seizures (from spiking temp) can be. My daughter had 2 of them when she was very young and I dreaded every fever she got after that. She did indeed outgrow it by 4 years old just like they said she would. Boy I couldn't wait until she hit 4 and then I relaxed a little bit when she got sick. I always had Tylenol ready (I found it worked better for her than the Advil), just in case! It is scary to go through but she was fine and unaffected by it.

From:	arhimes@msn.com
Date:	Wed Apr 14 13:15:36 2004
URL:	http://www.caringbridge.com/page/andrewh
Message:	We had a family in our church whos son had a seizure from spiking a high fever and the dr. here told them the same thing. That it would likely happen again-it must be the way his body is going to handle that sort of thing. They did tell them that he would grow out of it and that it wasn't dangerous. They too walk around with ibuprofen in their pockets. It is nice to know that this is a sort of "normal" childhood thing and not a "hurler" thing. I hope the fever will be gone soon and that you can come home. Love, Anne

From:	Alison
Date:	Tue Apr 13 23:16:20 2004
URL:	http://
Message:	Good to hear things are going in the right direction, and that you will at least be near to home at Northwick Park. Thinking of you all, stay strong and keep on fighting. Love from Alison, Peter, Ellie & Stacey

From:	labro4will@yahoo.co.uk
Date:	Tue Apr 13 22:08:25 2004
URL:	http://
Message:	I do hope Sophie is feeling better soon-what a scare-just as you were getting used to being home! Thinking of you all Love Laura (Mum to Will MPS2)

From:	michaela@centralins.com.au
Date:	Tue Apr 13 04:31:13 2004
URL:	http://
Message:	Hi all, Sophie you are such a strong little girl. I think of you often and check up weekly, you gave us all a little scare I hope they find what caused your high temps and that you can go home again very soon. love to all Michaela

From:	arhimes@msn.com
Date:	Mon Apr 12 23:05:09 2004
URL:	http://www.caringbridge.com/page/andrewh
Message:	I was so surprised to check in and read your awful news. I was so scared I had to flip to the end of the update to see if it turned out ok before I calmed down to read all the details. I am thrilled to see Sophie is off the vent and is up and knows you. I will pray that they find the answer to the fever very soon and get rid of it. No more scares like that for you! Happy Easter

From:	Jan, Pat, Zoe and Joy
Date:	Mon Apr 12 20:24:45 2004
URL:	http://
Message:	Thinking of you, happy Easter to all of you, hope you are home again soon. Love from us lot.

From:	beemer@iprimus.com.au
Date:	Mon Apr 12 04:00:18 2004
URL:	http://
Message:	Hi Sophie and family, We have been watching your progress closely all these months and were so pleased with your progress. Hope your last setback is over and you and Amy had a lovely Easter. Lots of love Kay and Mick (down under).

From:	Draee67@yahoo.com
Date:	Sun Apr 11 22:34:42 2004
URL:	http://caringbridge.org/il/niki
Message:	Keep strong Sophie, you will be in our prayers. Denna and Niki

From:	judithsween@aol.com
Date:	Sun Apr 11 19:04:16 2004
URL:	http://www.mighty-max.com
Message:	Dear Sophie, I hope that you are feeling better soon Precious Little One...Sending love,hugs,and prayers from Chicago....Mighty-Max's Granny

From:	Dana Slevin (Mighty-Max's Aunt)
Date:	Sun Apr 11 03:36:32 2004
URL:	http://www.mighty-max.com
Message:	What a scare little Sophie! Hope that you are feeling better for the Easter Bunny! Love and prayers to all of you on this special day.

From:	Angela
Date:	Sun Apr 11 00:07:05 2004
URL:
Message:	Padraic & Tina, What a scare, especially after everything has been going so well! I hope they find the cause of the problems quickly and Sophie's temperature comes down soon. You will be in my prayers over Easter. God bless Angela

From:	Auntie Joan
Date:	Sat Apr 10 11:56:55 2004
URL:	http://joano@eircom.net
Message:	Hi Sophie, Amy, Tina and Padraic, Happy Easter to all. You are all in my prayers at Easter Mass. Love from all in Dublin Joan

From:	michelle.flaherty@boimail.com
Date:	Thu Apr 8 17:31:19 2004
URL:	http://
Message:	Hi Sophie, Amy, Tina & Padraig, Happy Easter to you all and good to hear that things are going well. Best Wishes, John, Michelle & James

From:	Lisa Post ltjpost@cox.net
Date:	Thu Apr 8 03:21:39 2004
URL:	http://
Message:	My, one year ago today your world crumbled before your very eyes and now your little sweetie is filling your world full of hope and promises of a bright future! Amazing! Keep up the good work Sophie!!!

From:	mauerstrasse13@freenet.de
Date:	Tue Apr 6 21:05:12 2004
URL:	http://
Message:	Hello Tina and Padraic, Sorry that we haven't been in touch for so long. It's great to hear that Sophie is making progress. Sophie, you and your family had to go through so much during the last 12 months, you should be really proud of yourselves! Fingers crossed that the good progress will continue. Love from Germany, Ellen, Michael, Emma and Paul.

From:	labro4will@yahoo.co.uk
Date:	Mon Apr 5 19:37:26 2004
URL:	http://
Message:	Tina, I could really relate to the 'guilt' bit -also the comming home from hospital and then your in the'real'world trying to cope!I am so glad Sophie is getting on so well love to you all. Laura Brodie (Mum to Will mps2)

From:	Laughton
Date:	Sun Apr 4 23:28:35 2004
URL:
Message:	Hi. I dont know any of you i'm 16 not a mother but i was assigned a research paper for Biology. We picked the topic out of a bowl. I received Hurler Syndrome. I knew nothing of the topic and never heard of the disease and thought it would not be such a serious disease. I've been around kids all my life, my mom runs a daycare at my house here in the States i believe you're in england? Anyway, I just want to say i've visited some sites like this one as well and i'm just so surprised at how much love and support there are for these children. I hope Sophie is doing well. sorry for writing so much. Good luck with everything. -Em, Peachykeen2787@aol.com

From:	sstrom@quik.com
Date:	Fri Apr 2 06:13:55 2004
URL:	http://RachelJoy
Message:	Hi there cutie! I just wanted to let you know that I will be praying for your continued recovery. Rac helJoy

From:	jennifer Restemayer / jennmarie@bis.midco.net
Date:	Fri Apr 2 05:52:58 2004
URL:	http://www.caringbridge.org/nd/allison
Message:	What beautiful pictures! Amy and Sophie are too cute! I'm glad to hear that everything is going well! I think Amy's idea of a celebration for Sophie was a great one I hope you had fun! Love, Jennifer & Allison

From:	kellywaddell@hotmail.com
Date:	Wed Mar 31 21:42:26 2004
URL:	http://www.geocities.com/calebwaddell
Message:	I'm happy that Sophie is doing so well. She remains in our thoughts and prayers.

From:	Nancy Kenney (Max's Aunt) / nancy.kenney@mci.com
Date:	Mon Mar 29 21:35:40 2004
URL:	http://
Message:	Hi All!!! Yea, 200 days! That's wonderful news. Big Hugs to all.

From:	joano@eircom.net
Date:	Mon Mar 29 14:32:18 2004
URL:	http://
Message:	Hello to all, great to see Sophie is doing so well, hope you enjoyed the party Amy arranged. Love from all in Dublin Joan

From:	michaela
Date:	Mon Mar 29 01:43:15 2004
URL:	http://
Message:

From:	Lisa Post ltjpost@cox.net
Date:	Wed Mar 24 21:46:38 2004
URL:	http://
Message:	Happy Belated Mum's Day!!! I like checking in on Sophie and reading how well she is doing! Wow...6 months post already!

From:	rachelgaffney@msn.com
Date:	Tue Mar 23 21:38:39 2004
URL:	http://
Message:

From:	arhimes@msn.com
Date:	Tue Mar 23 16:43:52 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	Happy Mother's Day! I am glad to hear everything is going so well. Love, Anne

From:	dianeshawe@aol.com
Date:	Mon Mar 22 21:51:30 2004
URL:	http://
Message:	Winnie the Pooh has been on my mind today I have just given Jack's nursery curtains od Winnie the Pooh to another friend who is expecting a baby that is due to arrive very shortly. What a good part of the story to be quoting!. John wishes to thank you all for his birthday present that he enjoyed receiving at the weekend. Love Diane John & Jack

From:
Date:	Mon Mar 22 06:00:28 2004
URL:	http://
Message:	Dear Tina, Padraic, Amy and Sophie We are so glad to hear that you are stil doing so well. we think and talk about you often and have really enjoyed reading the site and looking at the beautiful pictures. Keep up the 'nappy swinging' Sophie. Lots of love from Rachael T and Debbie (on night shift on fox ward) xxx

From:	rossandra@bigpond.com
Date:	Sat Mar 20 13:12:14 2004
URL:	http://
Message:	Hello Sophie, lovely to read that all is progressing so well for you. Wow what a great party you will have when Amy gets to bring all her friends around. Tonnes of love to you, Amy & Mummy and Daddy Sandra

From:	kellywaddell@hotmail.com
Date:	Fri Mar 19 23:14:56 2004
URL:	http://www.geocities.com/calebwaddell
Message:	Just checking in on your beautiful little girl. Keeping climbing that hill Sophie. The top is in sight!!! You are in our prayers.

From:	dianeshawe@aol.com
Date:	Wed Mar 17 20:52:20 2004
URL:	http://
Message:	Sounds like you are going to have a big party when Sophie gets better when all the girls come round. What a lovely idea Amy Love Diane

From:	Rachel
Date:	Wed Mar 17 20:08:46 2004
URL:	http://
Message:	Dear sophie I hope you have a happy birthday and easter from Rachel(7).

From:	Lisa Post ltjpost@cox.net
Date:	Wed Mar 17 00:23:17 2004
URL:	http://
Message:	Your girls are soooo beautiful! I loved what Amy said about her friends wanting to come around and tell her little sister how much they care for her! So sweet!

From:	harrisangela@btinternet.com
Date:	Mon Mar 15 10:19:24 2004
URL:	http://
Message:	The new photos are lovely,may see you at clinic on Wednesday. Love Angela & Alex

From:	judithsween@aol.com
Date:	Mon Mar 15 00:11:00 2004
URL:	http://www.mighty-max.com
Message:	Dear Sophie, I love the new pictures!! You are so beautiful and so is your sister.I am glad to see you doing so well.Love,hugs, and prayers from Chicago...Mighty-Max's Granny

From:	Auntie Joan
Date:	Wed Mar 10 16:24:38 2004
URL:	http://
Message:	Hello to everyone, great to see Sophie is doing well and Amy is over her chicken pox. It appears a lot of energy is needed in your house but it is worth it when you are all together. Love from all in Ireland Joan

From:	Max's G-Pa J. USA
Date:	Mon Mar 8 23:28:08 2004
URL:	http://
Message:	Hi Sophie - glad you are doing well - and chase that GVH away for good this time. Fussy eater you are, eh ? Take care and we will check in on you soon.

From:	Jan, Pat, Zoe and Joy
Date:	Sun Mar 7 07:56:52 2004
URL:	http://
Message:	Love the nappy waving story, it brings back memories, you're going to have to be quick on your feet now with the full ones. It's heart warming to here stories like that after all you have been through. I'm glad the chicken pox is almost over, I was suprised when Zoe and Joy had it earlier this year by how nasty it was (but also by how well they coped with it). Fingers crossed that Sophie and Pardraic don't get it. Love from us lot xxxxx PS: Bought a bungalow in Devon on Friday Woo Hoo!

From:	arhimes@msn.com
Date:	Thu Mar 4 14:14:14 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	My things have been exciting around your house. That's what I get for not checking in for awhile. Hannah came down with the chickenpox for her 7th birthday but Andrew was a lot farther out but I still worried. I had never had them either but I got lucky and stayed well. I hope the GVHD will calm down and stay down. It sure can be a pain, popping up now and then. I will be glad when it is gone for good! Love, Anne

From:	Dana Slevin (Mighty Max's Aunt)
Date:	Thu Mar 4 04:04:42 2004
URL:	http://www.mighty-max.com
Message:	Hi Sophie and family, Just checking in on you ... glad to hear that you are gaining a little bit of weight and that things are going pretty well since you've been home. Hopefully you won't catch the chicken pox from your sister (and hope Daddy doesn't either). Know that we still think of you and pray for you!

From:	Lisa Post ltjpost@cox.net
Date:	Tue Mar 2 21:09:22 2004
URL:	http://
Message:	I'll keep my fingers crossed that Amy doesn't "share" her pox!

From:	dianeshawe@aol.com
Date:	Mon Mar 1 13:12:09 2004
URL:	http://
Message:	Noddy, Big Ears, PC Plodd and Tessy Bear all send their love to Sophie and Amy. Love Diane and Jack from Butlins in Bognor

From:	Pat, Jan Zoe and Joy
Date:	Sun Feb 29 15:02:00 2004
URL:	http://
Message:	We're all thinking cooling thoughts here (Sophie in the snow, Sophie on top of a windy hill etc etc etc), take care. Love from us lot. xx

From:	rossandra@bigpond.com
Date:	Sat Feb 28 11:34:52 2004
URL:	http://
Message:	Hello Sophie Just to let you know am still thinking of you, out here in Perth, Australia. Had lunch today with your daddy's cousins, Mick, Kay and Michaela Boreham, which was nice. We think of you often and hope that that temperature is fine again and all continues that way for you Love Sandra

From:	Lisa Post ltjpost@cox.net
Date:	Thu Feb 26 21:47:22 2004
URL:	http://
Message:	Try not to worry too much...I know that's easier said than done! I'm sure things will settle down with these newest symptoms. These Hurler kiddos love to keep us on our toes! God Bless!

From:	Angela
Date:	Thu Feb 26 16:25:06 2004
URL:
Message:	Padriac & Tona, I hope that Sophie's temperature and skin sorts itself out soon. It must be very worrying now that the hospital staff there all the time. Love Angelaxx

From:	Angela & Alex
Date:	Wed Feb 25 15:29:12 2004
URL:	http://
Message:	It was lovely to see you all at clinic today Sophie looks really great. Hope everything continues to go well. Love from angela & family

From:	Lisa Post ltjpost@cox.net
Date:	Tue Feb 24 22:47:20 2004
URL:	http://
Message:	Checking in on the little princess. Hoping all was well with the MRI.

From:	alison@sparrowhawk.uk.net
Date:	Fri Feb 20 19:55:15 2004
URL:	http://
Message:	Called in to see how you were all doing, life sounds hard work but great!My little man has just turned 1, a day we thought we may never see! I love to read your news & personal thoughts, everything I feel but can't say! Lots of love Alison & Oscar (Big O)

From:
Date:	Fri Feb 20 20:55:56 2004
URL:	http://
Message:

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Thu Feb 19 05:26:20 2004
URL:	http://www.caringbridge.org/nd/allison
Message:	Wow~ Sophie, you are doing wonderful! It brings a smile to my face to read about how well you are doing. I just wanted you to know that we are checking on you and we are praying that everything continues to go well for you! Love, Jennifer

From:	draee67@aol.com
Date:	Tue Feb 17 16:28:04 2004
URL:	http://caringbridge.org/il/niki
Message:	I check in on Sophie every chance that I get. She is our little angel showing us the way to get through our next big step. Sophie looks great and I am so glad that she is 100% engraphed. It's been a long road for you all but with the power of family you all are together once again. You are all in my prayers and thoughts. Sophie keep up the good work and show Niki how its done!!

From:	Jan, Pat, Zoe, Joy and Winnie.
Date:	Sat Feb 14 20:08:57 2004
URL:	http://
Message:	I don't know about being the luckiest parents in the world but I think that if you took out some shares in tissue companies you could be the richest parents in the world. You are just amazing, the photos are just lovely (I can't believe how much hair has grown in just a few short weeks). I am so proud to be your friend (and I've told Pat, Zoe, Joy and Winnie that they are as well ;-)) Love from us lot xxx

From:	Angela & Alex
Date:	Sat Feb 14 16:19:56 2004
URL:	http://
Message:	The new photos are lovely! Its great to hear you are doing so well and will going to clinic fortnightly but a shame for us because it means we will miss you when we go in 2 weeks time!Hope to see you again soon Love Angela and Alex (who's going back to school after easter!!!!!

From:	arhimes@msn.com
Date:	Sat Feb 14 13:38:16 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	Happy Valentine's Day!!! Those pictures are precious! I always said that the best thing I ever did for Hannah was to have Andrew. When he was first diagnosed, and they told us there was no hope and that he would die, that was one of my first thoughts. What kind of woman would she become without the gentling influance of her baby brother. Well he isn't so gentle any more but he is still the one that she loves. As for asking "why me", it is so normal and I am sure there isn't a parent that has gone through this that hasn't. It is like me griping about all of our little problems-insurance, therapy, glasses, hearing aids, medicines, money... it goes on and on, but there isn't a day that goes by that I don't relize how lucky we are. I just need to gripe and get it off my chest. Sophie is doing so well and looks WONDERFUL!!! She will do great and you will get to gripe just like me. Welcome to the club-it is a great one to be in. Love, Anne

From:	Lisa Post ltjpost@cox.net
Date:	Thu Feb 12 22:41:35 2004
URL:	http://
Message:	I LOVE the new photos, and YES you are the luckiest parents on earth!!!

From:	Alison
Date:	Thu Feb 12 14:16:11 2004
URL:	http://
Message:	Tina, Padraic, Amy & Sophie, It's great to see that Amy & Sophie are enjoying each other so much, the pictures are wonderful. Tina, I think it's ok to say 'why us' once in a while, you never complain at all, but you are on an emotional rollercoaster. I think you are all truly amazing. All our love, Alison, Peter, Ellie & Stacey

From:	Lisa Post ltjpost@cox.net
Date:	Wed Feb 11 20:08:56 2004
URL:	http://
Message:	Hi Sophie! I'm just checking in on you and I see you are doing well at home! Yeah!! God bless you!

From:	Auntie Joan
Date:	Wed Feb 11 12:58:18 2004
URL:	http://
Message:	Hello to all the O'Connor family, you seem to be very busy keeping up with Sophie, it is great to see she is doing well and hope she continues to improve. You are all in my prayers every day. Love Joan

From:	srussell@gmc-uk.org
Date:	Fri Feb 6 10:26:53 2004
URL:	http://
Message:	Glad everything went well on Wednesday. Jan and Pat are right, I'm still checking daily - a hard habit to break. Love Sally

From:	wardsweb@earthlink.net
Date:	Fri Feb 6 00:13:58 2004
URL:	http://www.quiltsoflove.com
Message:	Hello I would like to extend an invite to you to have a love quilt made by The Quilts Of Love Angels we would be honored if you would let us make one for Sophie.. Stop by our site anytime Just tell them Angel Chris sent you.. Blessings to you and lots of angel ((hugs)) to Sophie Angel Chris quiltsoflove.com

From:	Pat, Jan, Zoe and Joy
Date:	Thu Feb 5 20:17:05 2004
URL:	http://
Message:	I bet that I am not the only one that is still checking daily .. it hasn't been so long but it is a hard habit to break. I know that I am right because the visitor counter is still shooting up. Enjoy your second weekend at home together (ok so it is only Thursday but I think that you deserve a long weekend :-) ) Love from us lot xxx

From:	Max's G-Pa J. USA
Date:	Thu Feb 5 20:01:33 2004
URL:	http://
Message:	That box of balloons must have been fun - glad you are doing weel. Tell mum and dad hi.

From:	Jan, Pat, Zoe and Joy
Date:	Wed Feb 4 07:21:27 2004
URL:	http://
Message:	Keep up the good work, I know that it is hard work for you now but hope that looking at those two happy smiling reunited faces makes it a bit easier for you. Love from us lot xx

From:	Auntie Joan
Date:	Thu Jan 29 18:35:19 2004
URL:	http://
Message:	Hi Sophie, great news, Amy must be happy to have you home to play with and she is probably very busy trying to keep up with you. Love to Padraic and Tina, you are always in my thoughts you are such brave parents. Joan

From:	Alison
Date:	Wed Jan 28 23:50:34 2004
URL:	http://
Message:	Welcome home Sophie, it's great to know you are back in the neighbourhood. Hope you're keeping Amy busy playing and laughing. Tina and Padraig, hope you're getting used to the routine, and that you can soon start to relax a bit. Love, Alison, Peter, Ellie & Stacey

From:	Angela and Alex
Date:	Wed Jan 28 15:57:08 2004
URL:	http://
Message:	Fantastic News from old neighbours on Fox, room 10 24/7/03 til 19/09/03 Love to Sophie

From:	Sally
Date:	Wed Jan 28 11:11:21 2004
URL:	http://
Message:	Brilliant news! Love Sally

From:	Kelly Chandler
Date:	Wed Jan 28 10:22:25 2004
URL:	http://
Message:	Well done Sophie xxx

From:	michaela@centralins.com.au
Date:	Wed Jan 28 02:11:11 2004
URL:	http://
Message:	Home at last. wonderful news we are all so excited and pleased for you. Sophie you are a legend. Congratulations and lots of love from all your relatives in Aus. michaela

From:	torillhammer@c2i.net
Date:	Tue Jan 27 19:56:43 2004
URL:	http://
Message:	Dear, dear all of you! I am so glad, you all are home! Congratulation!" Continue the good work, Sophie! I wish the family " good luck," and all the very best, for the following days! Love to all of you from Torill in Bergen.

From:	Jan, Pat, Zoe and Joy,
Date:	Tue Jan 27 14:53:25 2004
URL:	http://
Message:	Good one Sophie - that the best sort of news. Love from us lot.

From:	Jenny Birmingham
Date:	Tue Jan 27 06:29:39 2004
URL:	http://www.missmollyb.com
Message:	Way to go, Sophie! Hope you are "settling in" again, and are happy to be HOME. We're so pleased for you. Thinking of you all at this happy (yet stressful without nurses) time. Best wishes for continued recovery! Love, The Birminghams

From:	dslevin@adelphia.net
Date:	Tue Jan 27 02:34:52 2004
URL:	http://www.mighty-max.com
Message:	Yeah Sophie! Welcome home! Best wishes to all of you as you make this wonderful adjustment. Dana Slevin

From:	Margaret, Mike & Grace Ciacciarelli
Date:	Tue Jan 27 01:57:49 2004
URL:	http://www.mighty-max.com
Message:	Congratulations to all of you! Great job Sophie!

From:	Lisa Post ltjpost@cox.net
Date:	Tue Jan 27 01:42:32 2004
URL:	http://
Message:	Yeah!! Congratulations!

From:	alison@sparrowhawk.uk.net
Date:	Mon Jan 26 22:50:41 2004
URL:	http://
Message:	We're so proud of you & your parents Sophie!! We haven't known you for long yet we've all been through so much together! This is a beautiful web site & has touched me deeply!! Please keep in touch. Love Alison, Adam Hollie & OSCAR Sparrowhawk (Room 9 GOSH)

From:	Nancy Kenney (Max's Aunt) / nancy.kenney@mci.com
Date:	Mon Jan 26 22:24:59 2004
URL:	http://
Message:	Great News Sophie!!!! Welcome home!!! Lots of hugs to the whole family!

From:	kalvindosanjh@hotmail.com
Date:	Mon Jan 26 12:30:43 2004
URL:	http://
Message:	What great news after such a long journey for you all. Hope all goes well from here on now that you are all together in your home. Words escape us, well done Sophie! Love from Kalvin, Tracey, Ben & Luke

From:	Wrestler (Mick)
Date:	Mon Jan 26 12:25:48 2004
URL:	http://
Message:	What great great news I am so happy for all of you... Keep up the good work Sophie. Mick

From:	Ramzi
Date:	Mon Jan 26 08:51:13 2004
URL:	http://
Message:	She's coming home, she's coming home, SOPHIE'S COMING HOME! God bless you all, Ramzi, Amanda, Patrick and Naomi

From:	dipak, Aarti, Karishma and Dilan
Date:	Mon Jan 26 09:28:42 2004
URL:	http://
Message:	YAY !!! FANTASTIC NEWS ! We couldn't be more pleased for you all. I bet Amy was beside herself with excitment. Well done Sophie! Good luck for Monday. We'll check in on the site to see how it all went...fingers crossed ;o) lots of love, Dipak, Aarti, Karishma and Dilan

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Mon Jan 26 04:48:01 2004
URL:	http://www.caringbridge.org/nd/allison
Message:	Good Luck tomorrow Sophie! I hope you will be DISCHARGED! Love, Jennifer

From:	Pat, Jan, Zoe and Joy
Date:	Sun Jan 25 21:24:16 2004
URL:	http://
Message:	:-)))))) Woo hoo, I'm going to be walking around with a stupid grin on my face all week now - people will thing that I am completely mad. I'm really happy for you. Love from us lot.

From:	denna Draee67@aol.ocm
Date:	Sun Jan 25 17:21:59 2004
URL:	http://caringbridge.org/il/niki
Message:	WOW we are so excitied that you are home!! Sophie has been our fighter also and with us getting ready for transplant we look up to Sophie and all the challenges that she overcame. Great job Sophie our prayers are with you and your family.. Love Denna, Brian and Nikole

From:	Angela
Date:	Sat Jan 24 20:01:49 2004
URL:
Message:	Congratulations on going hom, Sophie. I hope all goes well over the weekend so that you can stay home. Love Angela xxx

From:	Tami Slawson
Date:	Sat Jan 24 17:52:50 2004
URL:	http://www.caringbridge.com/ca/slawson
Message:	Hi Guys! I check your page daily but this is my first time posting. It made my week to read that Sophie is home!! YEAH!! Please know that Sophie is in my prayers! Keep up the good work Sophie! Hugs, Tami

From:	diane@sllecki.freeserve.co.uk
Date:	Sat Jan 24 11:11:30 2004
URL:	http://
Message:	Brilliant - That's wonderful news Love Nicky, Tony & Simon x x x

From:	Kate & Tony
Date:	Sat Jan 24 08:51:32 2004
URL:
Message:	WOW - Fantastic news - have a great weekend!!!

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Sat Jan 24 03:10:22 2004
URL:	http://www.caringbridge.org/nd/allison
Message:	YEAH! SOPHIE! I am SO happy you are home! Tina~ if I were you I would check at least every 10 minutes or so too :) LOL! I have to say reading your entry made my day! I will be praying that everything goes smoothly, and you continue to get better with each passing day! Love, Jennifer

From:	Lisa Post ltjpost@cox.net
Date:	Sat Jan 24 03:07:46 2004
URL:	http://
Message:	I know it's a bit scary to go "HOME"...but you will do just fine!!! It's great news! Way to go Sophie!!

From:	arhimes@msn.com
Date:	Sat Jan 24 01:46:55 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	Yea!!!!! Enjoy, enjoy, enjoy. I know you will. Home will be really good for her even if it is a little stressful on you. Just know that that too is "normal" and will get easier with time. I am so happy for you. Love, Anne

From:	Ellie's Gran and Grandad
Date:	Sat Jan 24 00:09:31 2004
URL:	http://
Message:	What a wonderful piece of news to read on our very new computor, tonight. We wish you all a truly happy weekend, together again, such a lovely family. We know it will be tough for you, Tina and Padraic, every minute, and we will keep thinking of you and Sophie and Amy with love. Judy and Ian.

From:	Cordula Postma
Date:	Fri Jan 23 19:10:47 2004
URL:	http://www.chabas.nl
Message:	just checked in and saw the good news that you are going home for the weekend. This will be so good for you and also for your parents. The first step too normal life. Dear Sophie you and your family are in our thoughts. Love Cordula, Bernd, Barnabas and Charliza

From:	arhimes@msn.com
Date:	Fri Jan 23 13:38:36 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	I just had to stop by after looking at your pictures and say how wonderful you look. I don't check them out very often and a child going through transplant can look pretty rough but Sophie you look terrific!!! I know you are going to be just fine and get home soon. Love, Anne

From:	Max's G-Pa J. USA
Date:	Thu Jan 22 01:42:03 2004
URL:	http://
Message:	Hey Sophie - just keep plugging along - and soon you will be home !!!

From:	conormalone@quilter.co.uk
Date:	Wed Jan 21 16:11:57 2004
URL:	http://
Message:	Wishing you a full and speedy recovery.

From:	Alison
Date:	Wed Jan 21 11:07:10 2004
URL:	http://
Message:	Sophie, in your new pictures you look as though you are growing up fast. Still beautiful as ever, though. Love, Alison, Peter, Ellie & Stacey

From:	Nancy Kenney (Max's Aunt) / nancy.kenney@mci.com
Date:	Tue Jan 20 15:46:26 2004
URL:	http://
Message:	Sophie, you were a beautiful blonde, but I have to say that you are a FABULOUS brunette. I hope your tummy gets better soon. I think about you often and pray for you every day. Keep playing little one! Lots of hugs.

From:	Kelly
Date:	Tue Jan 20 11:16:10 2004
URL:	http://
Message:	I love the new dark coloured hair it really suits you. You are such a happy lively little bundle of joy, your family must be sooo proud of you.

From:	Kate & Tony
Date:	Tue Jan 20 09:21:36 2004
URL:
Message:	Love the new piccies - Sophie, you're a real sweetie-pie. Keep taking those baby-steps. Love Kate, Tony, Anna, Rosie & Alex

From:	Jan, Pat, Zoe and Joy
Date:	Tue Jan 20 07:32:18 2004
URL:	http://
Message:	Fantastic photos, it is great to see Sophie out of bed and looking so healthy and cute. Great new hair style. Take care guys. Love from us lot xxx

From:	francesmccoy2001@yahoo.com
Date:	Sun Jan 18 17:14:20 2004
URL:	http://www.caringbridge.org\ky\katilynnsmom
Message:	hi sophie i have a little grandbaby she turn 2 this past may she has hurler 1.she is the light of my life.i wll b praying for you.god bless you all.

From:	Auntie Joan
Date:	Sun Jan 18 12:27:41 2004
URL:	http://joano@eircom.net
Message:	Hi Sophie, saying lots of prayers and keeping the fingers crossed that you get home on Monday, Love to Mam, Dad and Amy From all your Irish Aunties.

From:	Alison
Date:	Sat Jan 17 23:36:21 2004
URL:	http://
Message:	Glad to hear that Sophie is doing so well on all counts, and looking forward to knowing she has made it home at last. I bet she'll miss the attentions of all the Doctors and nurses, and I bet they'll miss her too. Love, Alison, Peter, Ellie & Stacey

From:	Cordula Postma
Date:	Sat Jan 17 15:31:27 2004
URL:	http://www.chabas.nl
Message:	Dear Sophie and family, my name is Cordula and I live with my husband in Woerden/Nederland. We have two children (Barnabas and Charliza, both have MPS 1 Hurler and they had there BMT in April and June 2003). I'm reading your dairy for quite a while now and I'm so happy to read that you are nearly ready to go home. We hope that the weekend will go well. You are in our thoughts. With love, Cordula and family

From:	arhimes@msn.com
Date:	Sat Jan 17 14:39:46 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	I love how you warn us that you are not going to update over the weekend. You must know what a bunch of worriers we are!! Enjoy the cleaning! Love,Anne

From:	Dana Slevin (Max's Aunt)
Date:	Fri Jan 16 22:42:01 2004
URL:	http://www.mighty-max.com
Message:	Sorry to hear that Sophie won't make it home today but hoping and praying that she will very soon. I think of her often and am so amazed by her strength and determination! Keep up the great work beautiful Sophie!

From:	kellywaddell@hotmail.com
Date:	Fri Jan 16 17:21:49 2004
URL:	http://www.geocities.com/calebwaddell
Message:	Engraftment 100% and no virus is really wonderful. Keep up the good work Sophie. We'll be praying that the feeding issues get worked out soon.

From:	arhimes@msn.com
Date:	Fri Jan 16 13:21:02 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	Wow, 100% and no virus!! That is such good news and so important. I hope you have a good weekend. Love, Anne

From:	arhimes@msn.com
Date:	Thu Jan 15 16:23:40 2004
URL:	http://ww.caringbridge.org/page/andrewh
Message:	I am sorry for the delay but you better believe that we will be right there with our well-wishes when the time comes...again. Thanks for the personal note. Hee, hee! I am glad that "home" is really home! That is the best and it will be coming soon! You are so right in saying that it is better to wait a little bit than to go home and come back. That is a real assult to you feeling of progress. We will be at Duke Mon,Tue and Wed maybe Sophie can work things out by then. I will check in as soon as we get back. Love, Anne

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Wed Jan 14 23:37:01 2004
URL:	http://www.caringbridge.org/nd/allison
Message:	Sophie is on the right track, and I think she is AWESOME! I like your thinking about being sure she is ready to go home instead of going too early and having to go back to the hospital. We will be praying she is ready to go HOME soon! Love, Jennifer

From:	Pat, Jan, Zoe and Joy
Date:	Wed Jan 14 22:12:12 2004
URL:	http://
Message:	Home, smhome - Sophie is getting better at her own pace and that is what is most important. Still excited, still feeling that things are going well, still want to tell everyone that I meet in the street that Sophie is working towards going home. Love from us lot xxxxxx

From:	dianeshawe@aol.com
Date:	Wed Jan 14 20:38:34 2004
URL:	http://
Message:	If it is snowning and cold with you just as it is here in Hertfordshire, its just as well Sophie is staying in the warmth of the hospital.As you say it is better to wait a little while than be going home to return. Thinking of you all. Love Diane

From:	Anne & Dave, Dublin
Date:	Wed Jan 14 16:54:48 2004
URL:	http://
Message:	Brilliant news everyone. Sophie, you are a fantastic girl.

From:	Lisa Post ltjpost@cox.net
Date:	Wed Jan 14 14:01:57 2004
URL:	http://
Message:	Woo Hoo!!!!

From:	arhimes@msn.com
Date:	Wed Jan 14 12:44:44 2004
URL:	www.caringbrige.com/page/andrewh
Message:	That is such fantasic news!!!! I am so excited for you. Does "going home" mean you will be at your own house? Here "home" can mean out-patient, which can last another 50 days or so and then you go "home, home" which means you get to leave the city the hospital is in and go to your house. Maybe you live close?? Either way, I am so thrilled and I know it means that Sophie is making wonderful progress. Love, Anne

From:	Kate & Tony
Date:	Wed Jan 14 10:47:50 2004
URL:
Message:	Excellent news!!!! I bet Amy can't wait to have her little sister & mummy back at home.

From:	Kelly Chandler
Date:	Wed Jan 14 10:39:01 2004
URL:	http://
Message:	Going home on Friday - absolutely brilliant news!!!! Well done Sophie.

From:	Ramzi
Date:	Wed Jan 14 09:47:20 2004
URL:	http://
Message:	Way to go Sophie! Congratulations everyone!

From:	Margaret Ciacciarelli
Date:	Wed Jan 14 01:39:17 2004
URL:	www.Mighty-Max.com
Message:	Sophie, We are so happy to hear the good news! We knew you could do it!

From:	Margaret Ciacciarelli
Date:	Wed Jan 14 01:38:37 2004
URL:	http://www.mighty-max.com
Message:

From:	Jan, Pat, Zoe and Joy
Date:	Tue Jan 13 23:53:17 2004
URL:	http://
Message:	Great news, I read yesterdays message and couldn't decide if next thursday or friday was this week or next week, I hoped for this week and from todays message this is true. Reunited at home again, superb. Well done Sophie, Tina, Padraic and Amy, things are well on the way to being sorted :-))))) Love from us lot

From:	Max's G-Pa J. USA
Date:	Mon Jan 12 18:07:23 2004
URL:	http://
Message:	Great going Sophie -

From:	Jackie & Jonn
Date:	Mon Jan 12 13:26:19 2004
URL:	http://
Message:	Happy New Year. Glad to hear you should be home soon. Hope everything keeps going well. Jackie, Jonn and Daisy

From:	mauerstrasse13@freenet.de
Date:	Mon Jan 12 11:55:31 2004
URL:	http://
Message:	What good news! I've just had a catch up on your website, we're so glad that Sophie has made such good progress. We keep our fingers crossed that you will be home in a couple of days' time. With our best wishes for 2004 for all of you, Michael, Ellen and Emma.

From:	bloomer018@aol.com
Date:	Mon Jan 12 04:25:22 2004
URL:	http://caringbridge.org/il/niki
Message:	Hi Sophie It's Niki's daddy and it sounds so good that you get to go home very soon. I pray every day for you and the entire Hurler community. For Mom and Dad Thank you for sharing Sophie's life, it helps all of us get through our battle against this rare Syndrome. You are our inspiration!

From:	Vicky - vix@postpals.co.uk
Date:	Sun Jan 11 23:48:50 2004
URL:	http://www.postpals.co.uk
Message:	Hey! Glad to hear you're on your way home after such a journey! Stop by at www.postpals.co.uk anytime - we'd love to send you some smiles :) All the best, vicky :o)

From:	judithsween@aol.com
Date:	Sat Jan 10 12:40:28 2004
URL:	http://www.mighty-max.com
Message:	Dear Sophie,So happy to hear the good news.Please ask your parents to give you a sweet kiss on your cheek for me.You are such a beautiful and brave little girl and we are all so proud of you.I know that our Angel Max will continue to watch over you..Love,Mighty-Max's Granny

From:	Lisa Post ltjpost@cox.net
Date:	Sat Jan 10 02:07:19 2004
URL:	http://
Message:	So sorry that Sophie had such an awful experience trying to get that CAT scan done, but I am very happy to read that it showed her fungal infection to be better! Keep up the good work Sophie!

From:	Max's Aunt Nancy / nancy.kenney@mci.com
Date:	Fri Jan 9 14:29:56 2004
URL:	http://
Message:	Yea Sophie! What good news!!!! I hope you get home soon. Keep up the great work. Hugs Hugs Hugs

From:	Max's G-Pa J. USA
Date:	Thu Jan 8 20:06:49 2004
URL:	http://
Message:	Going Home !!! Sounds Good !!! (Sorry - I goofed the prior entry.)

From:	Alison
Date:	Wed Jan 7 23:07:40 2004
URL:	http://
Message:	All I can say is "Hooray for Sophie". This is the very best kind of news. I look forward to hearing that you are all getting on with life at home again. Love, Alison, Peter, Ellie & Stacey

From:	dianeshawe@aol.com
Date:	Wed Jan 7 21:32:10 2004
URL:	http://
Message:	I have just read the news and leaving me with tears of joy that you will soon be home together. 2004 has only just begun for you. Love Diane

From:	Lisa Post ltjpost@cox.net
Date:	Wed Jan 7 22:35:34 2004
URL:	http://
Message:	How wonderful! Talk of discharge from the hospital for the end of next week!!! Yeah!!!

From:	rossandra@bigpond.com
Date:	Wed Jan 7 09:12:20 2004
URL:	http://
Message:	What wonderful news today Sophie, are you counting the sleeps until you can go home, bet Mummy & Dad are. Keep up all this great progress. Love little one Sandra

From:	kalvindosanjh@hotmail.com
Date:	Tue Jan 6 09:29:44 2004
URL:	http://
Message:	Happy new year to you all. We read the latest news most days and find it amazing how much courage you all have. Love from Kalvin, Tracey, Ben & Luke

From:	sally
Date:	Tue Jan 6 09:21:33 2004
URL:	http://
Message:	Happy New Year to you all. Just caught up on the news over christmas; I'm so pleased Sophie's doing so well. I'm sure she'll continue to improve and that she'll be allowed home soon. Look forward to seeing you all soon. Love Sally

From:	Dipak, Aarti, Karishma and Dilan
Date:	Mon Jan 5 21:48:59 2004
URL:	http://
Message:	Happy New Year to you all! We've just had a catch up on all of Sophie's news. Sounds fantastic. Keep up the good work Sweetie. Here's wishing you all you dream for in 2004. Lots of love, Dipak, Aarti, Karishma and baby Dilan :o)

From:	Max's G-Pa J. USA
Date:	Mon Jan 5 19:59:13 2004
URL:	http://
Message:	Hi Sophie - glad you are doing well - and hoping you go home soon - sounds like it !!!

From:	Lisa Post ltjpost@cox.net
Date:	Mon Jan 5 00:00:51 2004
URL:	http://
Message:	Yeah Sophie! Glad all went well about the line removal. So cute that you cry when others do! That just proves what a special little girl you are! HAve fun with big sis, Amy!!!

From:	www.draee67@aol.com
Date:	Sat Jan 3 04:25:14 2004
URL:	http://caring bridge.org/il/niki
Message:	Sophie you are one tough little girl and we look up to you. You are getting stronger everyday. Nikole and I give you big hugs. And our prayers are with you and your family. Love Denna and Niki

From:	arhimes@msn.com
Date:	Sat Jan 3 02:36:10 2004
URL:	http://www.caringbridge.org/page/andrewh
Message:	What a trooper you are Sophie!! Keep up the good work. I love hearing that word-"home". Love, Anne

From:	Jan, Pat, Zoe and Joy
Date:	Fri Jan 2 23:13:29 2004
URL:	http://
Message:	The big H - great news, well done Sophie, keep up the good work. Love from Jan.

From:	Alison
Date:	Thu Jan 1 22:28:08 2004
URL:	http://
Message:	Happy New Year to you all. We hope that 2004 will bring happiness to you all, and Sophie home again. Her new pictures are beautiful, as ever. Good luck for tomorrow. Love, Alison, Peter, Ellie & Stacey

From:	Angela
Date:	Thu Jan 1 19:42:39 2004
URL:
Message:	Padraic, Tina, Amy & Sophie, Happy New Year to you all. I hope this New Year is a real turning point for Sophie and that the Hickman line replacement goes well. Love Angela xxxx

From:	Kate & Tony
Date:	Thu Jan 1 10:12:48 2004
URL:
Message:	Great new piccies - carry on with the baby steps, Sophie. Happy New Year to you all. With love, Kate, Tony, Anna, Rosie & Alex

From:	Mike Ciacciarelli
Date:	Thu Jan 1 05:04:14 2004
URL:	http://www.mighty-max.com
Message:	Padraic & Tina, From our family to yours, best wishes for the coming year. It's already 2004 for you, but we've got the last couple of hours to get through over here. You have been through so much this past year and your family strength and resolve has been tested every day. From people who have been in a similar situation, it is obvious to us that you have the character and emotional fortitude to bring Sophie into the New Year with nothing but hope for the future.

From:	Cathy Peters
Date:	Thu Jan 1 01:08:17 2004
URL:	http://www.caringbridge.org/canada/isobel
Message:	I love the new pictures! Sophie- you are a doll!!!!


From:	Jan, Pat, Zoe and Joy
Date:	Wed Dec 31 21:33:04 2003
URL:	http://
Message:	Happy New Year (I've stayed up late to post this - it's at least 9:30pm now), things sound like they are starting to improve for you guys and we are looking forward to seeing this get better and better and better. Pat has just taken the empties outside (milk bottles, not gin) and we have had three inches of snow in the last two hours so tomorrow looks to be a good one. We are looking forward to talking to you soon, seeing your photos and enjoying next year with you all. Lots of love from us lot xxx

From:	Lisa Post ltjpost@cox.net
Date:	Wed Dec 31 14:36:24 2003
URL:	http://
Message:	Sophie, you are quite the little champ! So happy to read you've beaten those viruses! Now we need you to start to eat and drink so the TPN can be discontinued and then you can leave the hospital! Doesn't that sound wonderful! I'm praying for great engraftment and enzyme results and I'm sure you will please us all in that department! Happy New Year Sophie and family! May 2004 be a happy, HEALTHIER year! Love from Connecticut, USA

From:	arhimes@msn.com
Date:	Wed Dec 31 12:52:28 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	I am so glad to hear that today was a better day. You were starting to worry me. I prayed for you when I woke up several times during the night. Good news on the virus counts!! Have a great New Years and may this year be filled with hope and healing. Love, Anne

From:	michaela@centralins.com.au
Date:	Wed Dec 31 00:12:34 2003
URL:	http://
Message:	Fantastic news, you are such a strong little girl Sophie. Happy New Year to all with love from Aus.

From:	Kelly Chandler
Date:	Tue Dec 30 10:46:20 2003
URL:	http://
Message:	Happy New Year Sophie and family. You are doing sooooo well, keep up the fighting.

From:	Derek & Nicki
Date:	Tue Dec 30 09:54:37 2003
URL:	http://derekharding@tiscali.co.uk
Message:	Wishing you all the best for the coming year. Lets hope the improvements continue and you can all be together full time soon. Have a happy new year and keep up the fight Sophie.

From:	Eimear and Simon
Date:	Mon Dec 29 20:47:09 2003
URL:	http://www.simonrees.com
Message:	Here's wishing 2004 will bring you the best of good things... With love Eimear and Simon xx

From:	Lisa Post ltjpost@cox.net
Date:	Mon Dec 29 01:13:04 2003
URL:	http://
Message:	Sophie I am hoping you'll feel better tomorrow!

From:	Max's G-Pa J. USA
Date:	Sun Dec 28 22:56:07 2003
URL:	http://
Message:	Hi Sophie, Sounds like you are bumping along - take care and get off of the TPN so you can go home and play with your sis and mum and dad every day!!! From across the big pond - Have a Very Good New Year !!!

From:	Auntie Joan
Date:	Sun Dec 28 11:11:23 2003
URL:	http://joano@eircom.net
Message:	Hi Sophie, hope santa was very good to you and to Amy as you are such good girls. Hope you all had a happy christmas and I will be keeping you all in my prayers. Love to Padraid and Tina Joan

From:	Max's Aunt Nancy / nancy.kenney@mci.com
Date:	Sun Dec 28 02:37:52 2003
URL:	http://mighty-max.com
Message:	Hi beautiful Sophie. I hope you all had a wonderful Christmas. I believe you're going to have a wonderful New Year. Get some rest little one! Hugs to you from across the pond! (Isn't that a silly saying?)

From:	kellywaddell@hotmail.com
Date:	Fri Dec 26 16:51:59 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Hope you all had a Merry Christmas and praying for peace and joy for the coming year.

From:	des@eircom.net
Date:	Fri Dec 26 10:17:02 2003
URL:	http://
Message:	Belated HAPPY CHRISTMAS Keeping yiu all in the prayers very tired and very busy till today will have a break today Love to All Uncle des

From:	Shawn, Taylor, & ^^REESE^^
Date:	Fri Dec 26 03:06:09 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	Merry Christmas Sweet Sophie! I'm so glad to read that you're smiling and playing! I know Mom and Dad really love that Christmas present!!! You keep up the good work. And Thanks for making my Christmas a little brighter!

From:	diane@sllecki.freeserve.co.uk
Date:	Thu Dec 25 10:23:54 2003
URL:	http://
Message:	Merry Christmas. I'm sure Santa has been especially good to Sophie and Amy as they both deserve the very best gifts. One thing that we know they will not be wishing for is better parents as they have the best and most devoted parents. Have a wonderful Christmas and next year everything will be wonderful. Lots of Love Nicky, Tony & Simon

From:	Margaret Ciacciarelli
Date:	Thu Dec 25 05:59:10 2003
URL:	http://www.Mighty-Max.com
Message:	Merry Chirstmas beautiful Sophie!

From:	Alison
Date:	Thu Dec 25 00:57:00 2003
URL:	http://
Message:	Sophie, Happy Christmas, we hope that you, Mum, Dad and Amy all have a lovely Christmas day together. All our love, Alison, Peter, Ellie & Stacey

From:	Cathy Peters
Date:	Wed Dec 24 22:28:10 2003
URL:	http://www.caringbridge.org/canada/isobel
Message:	Merry Christmas!!

From:	Max's G-Pa J. - USA
Date:	Wed Dec 24 22:06:58 2003
URL:	http://
Message:	Sophie, Tell your mum that your bed is for sleeping when you are finished playing - and that when you get back on the solid foods you want wotsits and chocolate cake. In the mean time, Have a Great Christmas.

From:	Mike Ciacciarelli
Date:	Wed Dec 24 20:25:51 2003
URL:	http://www.mighty-max.com
Message:	Sophie, Santa will be getting to you first tonight, that's just the way time zones work. Your glow will undoubtedly guide his sleigh to your room. We'll be thinking of you this Christmas. I'm sure you don't want to be in the hospital, but know that there are many families rooting for you around the world. Your spirit is touching us today and everyday. Have a very Merry Christmas and best wishes for a blessed and peaceful (and healthy!) New Year!

From:	Jennifer Restemayer jennmarie@bis.midco.net`
Date:	Tue Dec 23 17:10:38 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Sophie~ It does my heart good to hear that you are doing so well! I want to wish you and your family a very Merry Christmas and a Happy 2004! Love, Jennifer

From:	Vivien
Date:	Tue Dec 23 11:43:50 2003
URL:	http://
Message:	Best wishes to you all for Christmas. I hope 2004 proves to be a good year for you and your family.

From:	Max's G-Pa J. - USA
Date:	Tue Dec 23 10:15:01 2003
URL:	http://
Message:	Sophie, Have a good Christmas and New Year.

From:	Anne & Dave, Dublin
Date:	Tue Dec 23 09:54:41 2003
URL:	http://
Message:	Sophie, delighted to hear that you are doing so well and it is great that you are enjoying playtime so much. Hope that you and all the family will have a really wonderful Christmas. Happy Christmas and best wishes for 2004.

From:	Kate & Tony
Date:	Tue Dec 23 09:40:52 2003
URL:
Message:	It's wonderful news that Sophie is doing so well. Happy Christmas to you all - I hope Santa brings everything you all want. Love Kate, Tony, Anna, Rosie & Alex xxx

From:	Lisa Post ltjpost@cox.net
Date:	Tue Dec 23 05:03:15 2003
URL:	http://
Message:	Great job, Sophie!!! Happy Holidays to you and your parents! I know that Sophie doing so well is the best present ever!

From:	michaela@centralins.com.au
Date:	Tue Dec 23 01:27:25 2003
URL:	http://
Message:	Keep up the good work Sophie, you are an inspiration. All our love to you and your family at Christmas. I am sure Santa will bring you lots of wonderful presents. Merry Christmas and a fantastic 2004. love all your family in Aus.

From:	Max's G-Pa J.
Date:	Tue Dec 23 00:45:56 2003
URL:	http://
Message:	Sophie, Tell your mum that you want wotsits and chocolate cake!!!

From:	arhimes@msn.com
Date:	Mon Dec 22 21:04:30 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	"Apples mixed with baby rice" We'll take it!!! Way to go Sophie. Soon you'll be having "Roast Beast" for Christmas. Well, maybe we'll save the roast beast until next Christmas. Doesn't that have a nice ring to it? We love you. Anne

From:	kellywaddell@hotmail.com
Date:	Mon Dec 22 20:46:34 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Happy Holidays Sophie and family. You remain in our thoughts and prayers little one.

From:	Tracy, Chad and Sophia Ashley (Max's Friends)
Date:	Mon Dec 22 19:52:41 2003
URL:	http://
Message:	Happy Holidays! Stay Strong little one!

From:	Max's cousin jenny
Date:	Mon Dec 22 15:32:18 2003
URL:	http://
Message:	Happy Holidays Glad to see that you are doing well. Love the story about the train ride. You guys probably made that mans day. Hugs from Chicago, jen

From:	jennybirm@comcast.net
Date:	Sun Dec 21 18:19:08 2003
URL:	http://www.missmollyb.com
Message:	Hey, sophie! Sounds like things are moving in the right direction... Hope you are feeling "up to snuff" in no time! Love you, sweetie! Merry Christmas- you are in our prayers. Hugs! Molly and family

From:	Auntie Joan
Date:	Sun Dec 21 13:58:55 2003
URL:	http://www.joano@eircom.net
Message:	Hi Sophie, great to hear you are improving, pity about the teeth but soon they will be all thru and we will be able to see them with your great smile. Love to Padraic, Tina and Amy. Love Joan

From:	Angela
Date:	Sat Dec 20 22:56:44 2003
URL:
Message:	Hi Sophie, I'm glad you are feeling a lot better. Keep getting stronger you lovely girl. Sorry to hear your new teeth are bothering you. What you really need to do is get them into something solid! Love Angela xx

From:	Max's G-Pa J. - USA
Date:	Sat Dec 20 20:41:30 2003
URL:	http://
Message:	Sophie, Sounds like you will be up and ready for Christmas. Good girl.

From:	torillhammer@c2i.net
Date:	Sat Dec 20 13:54:43 2003
URL:	http://
Message:	Hello again, all of you! The latest news I have just read about Sophie, were realy good, and in this way, I will wish you all, a Merry Christmas and a Happy New Year! I hope the nearest days, will continue in the same good direction for Sophie! Give the best Christmas and New Year wishes to Solveig from me too! Love to all of you from Torill in Bergen.

From:	judithsween@aol.com
Date:	Fri Dec 19 16:53:39 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie and family,Warmest wishes for the Holidays and especially for a very Happy New Year..Sending our Love and Prayers from Mighty-Max's family in Chicago.

From:	Max's G-Pa J. - USA
Date:	Fri Dec 19 05:16:46 2003
URL:	http://
Message:	Hi Sophie, Just checking in - sounds like things are moving along - time to get off of that TPN (boring stuff) and move onto whotsits!!!!

From:	Pat, Jan, Zoe and Joy
Date:	Thu Dec 18 23:04:53 2003
URL:	http://
Message:	...just in case Amy is watching Rudolph the red nosed raindeer. I just loved that story, I could so picture it happening, the thing is I think that most people on the tube are just waiting for a lovely little girl to demand Rudolph so that they can stop being 'on the tube' people and go back to being normal people. Keep up the good work Sophie, despite the setbacks of the last day or so I think you are doing really well. Love from us lot xxxxxxxx

From:	arhimes@msn.com
Date:	Thu Dec 18 20:57:06 2003
URL:	http://ww.caringbridge.org/page/andrewh
Message:	I am so glad things continue to do well(mostly). It makes me so happy to check in and read good things. I loved the story about the man on the train. It's so good to know there are nice old men out there that want to make little girls happy! Love, Anne

From:	rossandra@bigpond.com
Date:	Thu Dec 18 09:30:17 2003
URL:	http://
Message:	Hello again Sophie. Glad to read you are improving from your infection and hope your current problem soon disappears. I wish you a very very Happy Christmas, lots of love to you and your family. God Bless you all Sandra

From:	Margaret Ciacciarelli
Date:	Thu Dec 18 02:33:53 2003
URL:	http://www.Mighty-Max.com
Message:	Hi there! Sorry we haven't written in a while. We check in on you every day. You are all amazing. The train story made me smile. The man who sang was a good sport. Good luck with the CT scan on Friday. Happy Holidays!

From:	Alison
Date:	Thu Dec 18 00:03:52 2003
URL:	http://
Message:	Tina, Padraic, Amy and Sophie, We need Amy on the train in the morning rush hour - we could do with her to cheer everyone up! Sending you love and hugs, Alison, Peter, Ellie & Stacey

From:	Shawn, Taylor, & ^^REESE^^
Date:	Wed Dec 17 16:04:09 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	I'm so glad to hear all the improvements! I'm also eager to see more pictures so please hurry! I can only imagine how the CSA is affecting her! They are so adorable at the stage. Reese was on FK506 so he never got hairy! I know you're eager to go home but don't rush it. Let Sophie make that call! Sending hugs from the US and kisses from heaven!

From:	kimberley.tsoi-chan@t-mi.com
Date:	Wed Dec 17 09:12:45 2003
URL:	http://
Message:	Hello Sophie sweetie, hope you are ready for all the pressies Santa will bring to you. All my love Kimberley, Howie and the kids!! Love to you and your family.

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Tue Dec 16 20:56:56 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	It is great to hear that you are doing better! Keep it up! Love, Jennifer

From:	Dipak, Aarti, Karishma & Dilan
Date:	Tue Dec 16 09:43:28 2003
URL:	http://
Message:	Way to go Sophie! Keep up the good work. Lots of love Dipak, Aarti, Karishma and Dilan

From:	kellywaddell@hotmail.com
Date:	Mon Dec 15 22:16:31 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Our transplant doc told me once, "Doctors say teething doesn't cause fever. Mommy's tell you it does. There are more Mommy's than doctors." lol We'll be praying for your continued healing Sophie and that you get off the oxygen soon.

From:	Max's G-Pa J. - USA
Date:	Mon Dec 15 03:32:58 2003
URL:	http://
Message:	Atta girl Sophie - getting rid of those lines - keep up the good work. Say hi to mum and dad.

From:	Lisa Post ltjpost@cox.net
Date:	Mon Dec 15 03:23:45 2003
URL:	http://
Message:	Hi Sophie! I hope you are feeling better tomorrow so that you can enjoy your little escape down the hallway to the playroom! Keep that extra fluid off, ok? Good girl!

From:	Cathy Peters
Date:	Mon Dec 15 03:44:53 2003
URL:	http://www.caringbridge.org/canada/isobel
Message:	Praying that you don't need oxygen for very long Sophie!

From:	joano@eircom.net
Date:	Sun Dec 14 08:05:40 2003
URL:	http://
Message:	Hi Sophie, keep up the fight we are all praying very hard for you Love from all Auntie Joan

From:	kellywaddell@hotmail.com
Date:	Thu Dec 11 21:25:52 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Keep up the great work Sophie!!! We are all so proud of the way you are rebounding. You remain in our thoughts and prayers.

From:	Shawn, Taylor, & ^^REESE^^
Date:	Thu Dec 11 13:41:23 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	As we say in "The SOUTH".... YAHOOOOOO!!! Way to go Sophie... It does my heart so good to read such wonderful news first thing in the morning!! Keep it up babydoll!

From:	arhimes@msn.com
Date:	Thu Dec 11 11:38:22 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	I am so thrilled to hear all your wonderful news. It was such a happy update!!! I hope things continue along just the same way. Love, Anne

From:	judithsween@aol.com
Date:	Thu Dec 11 06:01:59 2003
URL:	http://www.mighty-max.com
Message:	Sophie,Keep up the good work Precious Little One.We are all so happy for you...Love,Hugs,and Kisses from the USA..Max's Granny

From:	Mike Ciacciarelli
Date:	Thu Dec 11 04:46:21 2003
URL:	http://www.mighty-max.com
Message:	Sophie, It warms our hearts here in Chicago to read of your hall escapes and your joy of play. We are so happy to read such wonderful reports. You are a champion and an inspiration. Your entire family is in our hearts and you are all so strong. Go Sophie Go!

From:	Max's G-Pa J.
Date:	Wed Dec 10 22:54:42 2003
URL:	http://
Message:	Atta girl Sophie - show em' how to do it - looks like you are having a good time - keep it up - you are making everyone happy.

From:	Alison
Date:	Wed Dec 10 22:21:01 2003
URL:	http://
Message:	Sophie, It's fantastic to hear how well you're doing, it really makes our day when you have a good one. Love Alison, Peter, Ellie & Stacey

From:	pralabro@yahoo.co.uk
Date:	Wed Dec 10 19:34:01 2003
URL:	http://
Message:	Glad all is so positive for sophie - Wishing you all a happy and Healthy Christmas Love Laura Brodie - mother of Wil mps2

From:	Cathy Peters
Date:	Wed Dec 10 17:03:16 2003
URL:	http://www.caringbridge.org/canada/isobel
Message:	Hi Sophie and family! I want you to know that I check on you daily and pray for you constantly. I am so happy that you gave your parents a smile- I can picture it- so pretty! And I'm glad that the doctor's had good news for you guys! Keep it up Sophie! Love, Cathy

From:	torillhammer@c2i.net
Date:	Wed Dec 10 12:55:55 2003
URL:	http://
Message:	Hello again! I think it was fantastic to read yesterday`s news about Sophie, and therefore I want to write you a few lines, to tell you how glad I am! I wish you all the very best, during the next days, and I promisse to write again before Christmas! Love to all of you from Torill in Bergen.

From:	Dipak, Aarti, Karishma & Dilan
Date:	Wed Dec 10 08:54:44 2003
URL:	http://
Message:	Keep smiling that beautiful smile Sophie and enjoy those festive lights! Time for some new pictures I think Daddy ! Lots of love, Dipak, Aarti, Karishma and Dilan

From:	michaela@centralins.com.au
Date:	Wed Dec 10 04:45:56 2003
URL:	http://
Message:	Way to go Sophie, such a strong little girl.Have a wonderful Christmas and enjoy the flashing lights, I hope Santa brings you lots of lovely things. All our love and thoughts are with you and your family. Love Michaela, Aunty Kay, Uncle Mick and all your Aussie family

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Wed Dec 10 04:11:57 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	I bet your smile is so beautiful! I know I sure would love to see it in person! Love, Jennifer

From:	Max's G-Pa J. - USA
Date:	Tue Dec 9 22:44:57 2003
URL:	http://
Message:	Keep up the good work Sophie.

From:	Lisa Post ltjpost@cox.net
Date:	Tue Dec 9 22:09:24 2003
URL:	http://
Message:	Good news to hear Sophie's liver function tests are better! Keep up the good work Sophie!!!

From:	Pat, Jan, Zoe and Joy
Date:	Tue Dec 9 22:04:42 2003
URL:	http://
Message:	Keep on smiling Sophie. Love from us lot

From:	pralabro@yahoo.co.uk
Date:	Tue Dec 9 19:57:57 2003
URL:	http://
Message:	Keep Smiling Sophie- Make Mum and Dad happy and the rest of us too !!!! Love Laura Brodie

From:	Shawn, Taylor, and ^^REESE^^
Date:	Tue Dec 9 14:33:47 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	Hi Sophie... I'm so happy to hear you're smiling. I pray your liver heals quickly and you get back to your happy self again. Padraic and Tina - I pray you don't need to biopsy as that is very dangerous. I know it's tuff having Sophie in the hospital at Christmas but remember why you're there... to give her more Christmases than she would've had without transplant. Checking in on Sophie has become my reason to sign on in the mornings. I hope and pray she continues on this road to recovery. She's such a doll baby and she has stolen my heart. With my own Reese and Max gone, Sophie is my hope for Hurler Children all over the world... Keep up the journaling and thank you for sharing your life with the world. Have a Merry Christmas!!!

From:	Dana Slevin (Max's Aunt)
Date:	Tue Dec 9 15:12:02 2003
URL:	http://www.mighty-max.com
Message:	KEEP SMILING SOPHIE! Here's hoping that the doctors willl figure out what is going on with your liver soon. Please know that you are in our thoughts and prayers!

From:	TLSlawson@aol.com
Date:	Tue Dec 9 04:12:21 2003
URL:	http://caringbridge.com/ca/slawson
Message:	Hi Sophie, I have been reading your updates for awhile now but never post. You are the cutes little girl! Please know that many people are praying for you. Keep fighting MPS and playing jokes on your daddy! Hugs, Tami

From:	Max's G-Pa J.
Date:	Tue Dec 9 01:29:36 2003
URL:	http://
Message:	Well Sophie - playing tricks on your dad are you? I say that's standard female behavior - and that's a good sign - keep up the good work - and will check in on you soon.

From:	Ramzi
Date:	Mon Dec 8 23:52:08 2003
URL:	http://
Message:	Sophie, Keep smiling, we're still praying for you and your fantastic family. Love Ramzi, Amanda, Patrick and Naomi

From:	kellywaddell@hotmail.com
Date:	Mon Dec 8 22:06:27 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Praying that Sophie continues to progress and that her liver will show signs of improvement with the medications gone.

From:	Jan, Pat, Zoe and Joy
Date:	Mon Dec 8 19:21:12 2003
URL:	http://
Message:	Sophie, you are such a good girl that Santa is going to have to take of the roof of the hospital to get all of the toys in. Keep up the good work Tina and Padraic. Love from us lot.

From:	shoe111550@yahoo.com
Date:	Mon Dec 8 14:46:23 2003
URL:	http://
Message:	Go Sophie, Rest and get strength! Prayers are coming in all directions!! Janelle (Alli's Nana)

From:	judithsween@aol.com
Date:	Mon Dec 8 14:29:58 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie,I love hearing about those nice quiet days. Keep up the good work...Sending Hugs and Kisses from Chicago...Mighty-Max's Granny

From:	Margaret Ciacciarelli
Date:	Mon Dec 8 04:09:22 2003
URL:	http://www.Mighty-Max.com
Message:	Sophie, We think about you and check in on you every day. What a funny trick you play on your dad in the middle of the night (hee hee)!

From:	shoe111550@yahoo.com
Date:	Sun Dec 7 01:22:58 2003
URL:	http://
Message:	YEA! A few steps will result in a sprint before long. Way to Go Sophie! Janelle Schumacher (Alli's Nana)

From:	Lisa Post ltjpost@cox.net
Date:	Sun Dec 7 00:07:29 2003
URL:	http://
Message:	Good news that Sophie was able to take a little jaunt into the hallways! Keep getting stronger Miss Sophie! We are all rooting for you!!!!!

From:	jackieoconnor@btopenworld.com
Date:	Sat Dec 6 17:07:05 2003
URL:	http://
Message:	Hi We have been thinking about you alot and glad to see that Sophie is feeling better. Will speak to you tomorrow Lots of Love Jackie, Alan and girls x

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Sat Dec 6 06:35:46 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Hey Sophie! It is great to hear that you are feeling a little better! We are thinking and praying for you! Love, Jennifer & Allison

From:	nancy.kenney@mci.com
Date:	Fri Dec 5 15:22:41 2003
URL:	http://
Message:	Hi beautiful Sophie! I'm praying that you start feeling better real soon. You're doing a great job little one! Lots of hugs and kisses from Max's Aunt Nancy.

From:	Alison
Date:	Fri Dec 5 10:47:10 2003
URL:	http://
Message:	Hi Sophie, Hope you're continuing to improve, and giving your Mum and Dad lots of smiles. Alison, Peter, Ellie & Stacey

From:	rossandra@bigpond.com
Date:	Fri Dec 5 06:03:11 2003
URL:	http://
Message:	Hello Sophie I hope today that you are feeling a little better and that the virus is rapidly leaving your body. Love and prayers for you and your Mummy and Daddy Sandra

From:	Max's G-Pa J.
Date:	Thu Dec 4 22:15:15 2003
URL:	http://
Message:	Hey Sophie - just keep working on that stuff and you will be OK - and you apparently know how to melt your daddy's heart (a power all little girls seem to have).

From:	kellywaddell@hotmail.com
Date:	Thu Dec 4 15:21:18 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Just checking in on Sophie. Keep fighting little girl and we'll keep praying for complete healing!

From:	Lisa Post ltjpost@cox.net
Date:	Thu Dec 4 15:32:06 2003
URL:	http://
Message:	Just checking in on Sophie and hoping she is feeling better. She continues in my prayers.

From:	Dipak, Aarti, Karishma & Dilan
Date:	Thu Dec 4 08:46:19 2003
URL:	http://
Message:	Keep Kicking Sophie!!Kicking those legs, kicking that virus and most importantly kicking yourself to health ! Say hi to your Mum, Dad and big Sis Amy for us too. Lots of love, Dipak, Aarti, Karishma and Dilan

From:	jennybirm@comcast.net
Date:	Thu Dec 4 03:03:05 2003
URL:	http://www.missmollyb.com
Message:	Hi, Sophie! We hope you are feeling better soon! Keep showing them what you're made of, little lady! We'll be praying for you. Love, Molly Birmingham and family

From:	glenda@mum114freeserve.co.uk
Date:	Wed Dec 3 19:55:56 2003
URL:	http://
Message:	It great to see you are having some fun with sophie as a family.

From:	Jagators24@msn.com
Date:	Wed Dec 3 19:13:10 2003
URL:	http://www.caringbridge.org/page/tommyries
Message:	Sophie, I have been checking in on you for some time..I have 2 children with Hurlers..One right now is on Day 11 with her BMT...Her name is Kaitlyn Jewel...Hew older brother, Tommy is 6...She also has an older sister, Kirstin who was Tommy's donor for his BMT on 1-14-99..We live in Florida but right now we are in Minnesota...Stay strong and I pray all the bugs go away...

From:	Kate
Date:	Wed Dec 3 17:48:50 2003
URL:
Message:	Keep fighting, Sophie. You're such a brave little girl. Kate & Tony xxx

From:	Judie Sweeney-Mighty-Max's Granny
Date:	Wed Dec 3 15:24:44 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie, Glad to hear that you are feeling better.Keep up the good work. You are one very special little girl...Love, Hugs, and Kisses from the USA..Max's Granny

From:	Shawn, Taylor, & ^^REESE^^
Date:	Tue Dec 2 04:00:33 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	Although my Reese never had a fungal infection, I know the dangers of it.. I pray it is cleared up soon. Sophie, sweet baby girl, you hang in there.. get all the rest you need and keep smiling for us, OK? You've got us on your side, and I'll ask ^^REESE^^ and ^^MAX^^ to keep an eye on you! We love you! Stay strong sweetie!

From:	pralabro@yahoo.co.uk
Date:	Mon Dec 1 19:34:10 2003
URL:	http://
Message:	we are so glad Sophie is feeling better -best wishes for this progress to continue love Laura ,Dave,Lly And Will Brodie (MPS 2)

From:	Dipak, Aarti, Karishma & Dilan
Date:	Mon Dec 1 18:30:08 2003
URL:	http://
Message:	We can all understand your pride - She's one strong cookie! Keep up the good work Sophie, especially showing off to the nurses ! Lots of love, Dipak, Aarti, Karishma and Dilan

From:	Max's G-Pa J.
Date:	Mon Dec 1 17:05:33 2003
URL:	http://
Message:	Good afternoon Sophie - playing peek-a-boo. Sounds good to me - take care and have a good day. Burbank, Il. USA

From:	arhimes@msn.com
Date:	Mon Dec 1 16:31:14 2003
URL:	http://
Message:	I was almost afraid to check your page this morning after our holiday weekend but I am so happy and relieved to see that you are holding your own and maybe turning away from danger. Get lots of sleep and let your body rest and renew. My prayers are with you. Love, Anne

From:	Alison
Date:	Mon Dec 1 10:32:02 2003
URL:	http://
Message:	How nice to read such a positive update, Sophie you are a star. Thinking about you all every day. Love, Alison, Peter, Ellie & Stacey

From:	mauerstrasse13@freenet.de
Date:	Sun Nov 30 21:09:02 2003
Message:	Dear Sophie, Keep fighting that infection! Thinking of you and your family, Michael, Ellen and Emma.

From:	Janelle Schumacher
Date:	Sun Nov 30 19:35:47 2003
Message:	Tina, Padraic, and Sophie, Here is another hopeful email to you and your baby girl. The power of positive prayers is HUGE! Best Wishes. Janelle Schumacher (Grandmother to Allison in North Dakota)

From:	joano@eircom.net
Date:	Sun Nov 30 11:27:06 2003
URL:	http://sophie@melroseroad.co.uk
Message:	Dear Sophie, keep fighting those bugs you are a very brave little girl, you are always in our prayers. love to Mum, Dad and Amy. From all your Irish Aunties and cousins.

From:	Mike Ciacciarelli (Max's Dad)
Date:	Sun Nov 30 00:33:06 2003
URL:	http://www.mighty-max.com
Message:	Padraic and Tina, Even now, while we make arrangements for Max, we are thinking of you and of your precious Sophie. Sometimes it's a little step that turns despair into hope. Please treasure each and every moment of progress - and sometimes things like NOT going on a vent, or NOT having a fever, etc. are progress. In transplant, sometimes standing still is the biggest step forward you can make. You guys are doing great under all the stress. 80 days is a long time for anyone, especially your sweet girl. She is a real champion, strong and brave and full of life. No sickness, no transplant, no complication from transplant, can take that away. Stay MIGHTY!

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Sat Nov 29 03:02:13 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Tina, Padraic, and Sophie, Just wanted to let you know that I am thinking of all of you and praying that the Adenovirus GOES AWAY!!! Love, Jennifer

From:	crookiemorsi@yahoo.com
Date:	Sat Nov 29 03:47:49 2003
Message:	Pray everyday is an improvement for you Sophie!

From:	glenda@mum114freeserve.co.uk
Date:	Sat Nov 29 00:33:40 2003
Message:	Our thoughts are with you all look forward to more pictures and news

From:	pralabro@yahoo.co.uk
Date:	Fri Nov 28 19:16:45 2003
Message:	Keep fighting that infection Sophie! I am thinking of your and sending get well wishes! My little boy Will has HUNTERS SO we have an idea what you go through every day. Love LAURA

From:	Max's G-Pa J.
Date:	Fri Nov 28 15:33:53 2003
Message:	Good morning from the States Sophie and family.

From:	Dipak, Aarti, Karishma & Dilan
Date:	Thu Nov 27 15:25:58 2003
Message:	It's not just Mike and Margaret who are incredible parents! You're both pretty special, and both Amy and Sophie know it too. Stay strong. Dipak, Aarti, Karishma and Dilan

From:	Alison & family
Date:	Thu Nov 27 11:33:44 2003
Message:	Sophie, Hope you're feeling a bit better today, and that you can kick that infection out very soon. Love from us all.

From:	judithsween@aol.com
Date:	Thu Nov 27 06:41:02 2003
Message:	Sweet Sophie, Keep fighting beautiful Little One.Mighty-Max is now watching over you and he will give you strength...Love, hugs, and kisses from the states..Max's Granny

From:	Dipak, Aarti, Karishma & Dilan
Date:	Wed Nov 26 14:24:37 2003
Message:	Sophie, your strength and resiliance never ceases to amaze us! Just keep going sweetheart ! You're all always in our thoughts and prayers! Lots of love, Dipak, Aarti, Karishma and Dilan

From:	Alison
Date:	Wed Nov 26 10:04:56 2003
Message:	Sophie, We know you're strong and can fight off this nasty infection. There are a lot of people supporting and praying for you every day. Love to your Mum, Dad and Amy, Alison, Peter, Ellie & Stacey

From:	Margaret & Mike Ciacciarelli
Date:	Wed Nov 26 06:10:22 2003
URL:	http://www.Mighty-Max.com
Message:	We are rooting for you Sophie. You are a strong girl and those infections don't stand a chance.

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Wed Nov 26 02:29:48 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Sophie~ I'm releived to hear the GVHD is under control so they can stop the Steroids. I know you need all of your energy to fight off the virus. I will be praying that you get a little stronger every day! Love, Jennifer

From:	Shawn, Taylor, & ^^REESE^^
Date:	Tue Nov 25 18:48:49 2003
URL:	http://caringbridge.org/nc/reesecup
Message:	Ok, Sophie.. let's kick some fungus butt, OK?! I need to see some good reports.. you are such a sweetie and I know you're a fighter.. keep those smiles coming for Mommy and Daddy... I know they enjoy every second of them!!

From:	Lisa Post ltjpost@cox.net
Date:	Mon Nov 24 22:01:48 2003
Message:	Hi Sophie! I hope you had a better day today!

From:	Dipak
Date:	Mon Nov 24 12:57:56 2003
Message:	Sophie, You keep up that good work and keep getting stronger. Padriac and Tina - What you're doing is nothing short of amazing! We admire you for your strength and resilience and thank you for the lessons that I certainly have learnt from the likes of you and Max's parents.

From:	Angela
Date:	Sat Nov 22 23:22:03 2003
URL:
Message:	Sophie, Glad to see you are feeling a bit better. Just keep fighting the virus and GVHD and you will soon have them beaten. Love Angela xx

From:	Max's G-Pa J.
Date:	Sat Nov 22 23:10:50 2003
Message:	So you are being a bit grizzly heh? Sounds like you are doing well overall - keep it up - and if grizzly means a bit feisty that's all the better. Have a good day - Max is in for a good snowstorm - the weather service says up to ten inches (that's about 25 cm to you guys). Should be quite a show in the north woods. Keep up the good work. From Burbank, Illinois - USA

From:	Shawn, Taylor, & ^^REESE^^ Coble
Date:	Fri Nov 21 14:35:28 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	Sophie - I'm so glad to read good news. It does my heart so good to see that you are playing and laughing. I pray you continue on the road to success and hope that all the bumps have already been crossed over. Keep smiling and I look forward to more pictures! Sending hugs from North Carolina and kisses from Heaven...

From:	Alison
Date:	Fri Nov 21 11:38:18 2003
Message:	Sophie, No more funny turns, please. Just concentrate on getting back to your cheeky self, and giving your Mum and Dad lots of cuddles. Love from us all, Alison, Peter, Ellie & Stacey

From:	Max's G-Pa J.
Date:	Thu Nov 20 17:16:09 2003
Message:	Sophie - glad that you are doing so well in such difficult circumstances - anyone would feel under the weather with all of those medicines and stuff inside. God bless and tell your mum and dad hi. Keep up the good fight.

From:	Mike Ciacciarelli (Mighty-Max's Dad)
Date:	Thu Nov 20 08:30:52 2003
URL:	http://www.mighty-max.com
Message:	Sophie, You and Max have something special because while your heartrate was hitting 200, Max's blood pressure was getting up to that same number a few times. Things were much better today for him and I hope the same for you. Keep those fevers in check, the heartrate down, and the virus under control. You are doing a great job and you are so brave and so strong. Keep on rolling around, it is a wonderful thing to read about how much energy you have through all of your trials. We are all so proud of you!

From:	kellywaddell@hotmail.com
Date:	Wed Nov 19 20:00:06 2003
URL:	http://www.geocities.com/calebwaddell
Message:	We're still praying daily for you little Sophie. Show everyone what a fighter you are and kick that virus and GVHD out.

From:	Dipak, Aarti, Karishma & Dilan
Date:	Tue Nov 18 13:25:55 2003
Message:	Hi Sophie !! Great to hear you're getting bak to your 'cheeky' self ! That deserves a big bag of Wotsits AND some Choccie cake I think! Keep up the good work sweetheart ! Lots of love, Dipak, Aarti, Karishma and Dilan

From:	torillhammer@c2i.net
Date:	Mon Nov 17 21:37:26 2003
Message:	Hello again! Also tonight it was fantastic to read about Sophie`s good form, and I give my best wishes to all of her nearest family! If Tina`s Norwegian "mormor" had lived today, she would have been 80 years old, just on this date the 17th of November! Let me therefore in this way ask you to bring my best and spesial love to Solveig, who surely misses her mother today, who died the 19th of March - 2000. I`m thinking of all of you! Best wishes, and love from Torill in Bergen.

From:	Alison
Date:	Sun Nov 16 23:12:01 2003
Message:	Sophie, Hope you manage to get rid of the sickness soon, you need your energy for more playing. Glad to hear that the rest of your progress is good, though. Miis you, Love Alison, Peter, Ellie & Stacey

From:	Max's G-Pa J.
Date:	Sun Nov 16 21:36:51 2003
Message:	Padraic - Sophie is probably trying to get you to bring back some whotsits - or chocolate cake.

From:	Margaret Ciacciarelli
Date:	Sun Nov 16 06:58:15 2003
URL:	http://www.Mighty-Max.com
Message:	Sophie, Just checking in to see how you are doing. I hope you feel better tomorrow. You are such a strong little girl.

From:	Lisa Post ltjpost@cox.net
Date:	Sat Nov 15 23:31:51 2003
Message:	Hi Sophie! I hope you feel better soon and get rid of that pesky little fever! I'm thinking about you!

From:	torillhammer@c2i.net
Date:	Sat Nov 15 21:00:34 2003
Message:	Hello again,Sophie`s nearest family! It was fantistic to read yesterday`s news about Sophie, and in this little message, I will only write to tell you how glad I am for all of you, that things are going so well just now. It realy is my biggest hope, that everything continues in this same good direction both day and night, and I wish you all the very,very best for the next days! Love from Torill in Bergen.

From:	Max's G-Pa J.
Date:	Sat Nov 15 01:57:42 2003
Message:	So you have streaked hair ? Been sneaking out to have your hair done? I'll bet it looks really nice - take care and keep on getting good marks from your doctors.

From:	Pat, Jan Zoe and Joy
Date:	Fri Nov 14 19:59:01 2003
Message:	It's a joy to read the updates at the moment, Sophie seems to be improving daily. Keep up the good work chaps. Love from us.

From:	Dipak, Aarti, Karishma & Dilan
Date:	Fri Nov 14 15:53:33 2003
Message:	Hi Sophie ! Keep up the good work sweetheart - especially that 'foot piano'!! That'll impress the music lady ! Lots of Love, Dipak, Aarti, Karishma and Dilan

From:	frmurato@nyct.com
Date:	Thu Nov 13 20:05:30 2003
URL:	http://Frank father of ANGEL Pam (www.caringbridge.org/ny/pamostrowski)
Message:	I had originally planned to visit as many caringbridge sites as possible, and leave some encouraging words, prior to my daughters passing. Unfortunately her passing came sooner than we had expected, but longer than any of her doctors expected. Another angel takes flight. My daughter Pam had a brain tumor and was fighting the fight since November 4th, 2002, after the birth of her daughter (Casey Morgan). My youngest daughter, Karen, set up a caringbridge website for Pam. Karen's friends mother shared a prayer with us, that I would like to share with you and Sophie. It's called DON'T QUIT: Don't Quit - When things go wrong, as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high, and you want to smile, but you have to sigh, When care is pressing you down a bit - Rest if you must, but do not quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a fellow turns about, When he might have won had he stuck it out. Don't give up though the pace seems slow - You may succeed with another blow. Often the goal is nearer than it seems to a faint and faltering man; Often the struggler has given up when he might have captured the victor's cup. And he learned too late when the night came down, How close he was to the golden crown. Success is failure turned inside out - The silver tint of the clouds of doubt, And you never can tell how close you are, It may be near when it seems afar, So stick to the fight when you're hardest hit, It's when things seem worst that you mustn�t quit.(Just call on Jesus). I would also like to share a saying that was on the card my wife Diane picked out, and we bought for Pam: If you were a star That wasn�t expected back In the universe For a thousand years, I�d wait. If you were the sky And everyone went inside When you got sad And started to rain, I�d stay. And if you were a peach And the world decided to get rid of all peaches, I�d pick you up, Put you in my pocket� AND KEEP YOU�. FOREVER.. Prayers have scientifically been proven to work. REMEMBER NEVER GIVE UP THE FIGHT. You are in our prayers. GOD bless you all.

From:	Max's G-Pa J.
Date:	Wed Nov 12 22:58:21 2003
Message:	Looks like you are providing good reports - keep sending them - good girl. Tell your mum and dad hi.

From:	arhimes@msn.com
Date:	Wed Nov 12 19:08:49 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	I am so glad that things are going so well. I love to read that the kids are playing-then I know that they are doing alright! The new game sounds like lots of fun and a way to pass many, many hours. Make sure you get everyone to join in Sohoie. Love, Anne

From:	kellywaddell@hotmail.com
Date:	Wed Nov 12 17:58:08 2003
URL:	http://www.geocities.com/calebwaddell
Message:	lol Caleb knows that game well. He's constantly using his as a drum. I was glad to here Sophie is kicking that virus out. She stays in our thoughts and prayers.

From:	Ramzi
Date:	Wed Nov 12 14:25:01 2003
Message:	Sophie, Where's your tummy???? (Great to read some good reports - and everyone enjoyed the new photos) Ramzi, Amanda, Patrick and Naomi

From:	Mike Ciacciarelli (Mighty-Max's Dad)
Date:	Wed Nov 12 05:00:36 2003
URL:	http://www.mighty-max.com
Message:	Great job with the virus Sophie! And the new tummy game sounds like a lot of fun. It's a good thing tummies don't come with windows because all you would see is Wotsits! Padraic & Tina, you guys are doing a fabulous job. You are strong parents with such a strong child. Keep up the fight!

From:	michaela@centralins.com.au
Date:	Wed Nov 12 02:25:56 2003
Message:	Way to go Sophie!! We are all watching and checking on you daily here in Aus. All our love and thoughts are with you and your family. Love Michaela

From:	aunty anita
Date:	Tue Nov 11 13:35:00 2003
Message:	love to all you guys. keep up the good fight. speak to you soon. prays are with you. love from all of us (jessica,johnathan,john and me)

From:	Jenna: hockeykid@telus.net
Date:	Tue Nov 11 09:06:13 2003
URL:	http://www.matmice.com/home/fighterandchampion
Message:	Hello my name is Jenna and I was born with a chronic bone disease. i love visiting other kids pages and encouraging them. Sophie is a real cutie and she is in my prayers. SHe is a real fighter, and a true hero in life! I love that smile!

From:	Max's G-Pa J.
Date:	Tue Nov 11 02:09:44 2003
Message:	Sounds like you are doing well - very good Sophie - good news. Take care and keep those bugs out so that you and your parents can have a good holiday season.

From:	torillhammer@c2i.net
Date:	Mon Nov 10 20:59:19 2003
Message:	Dear Tina, and all of you! It was fantastic to read the Sunday news about Sophie, and I realy hope the situation will go on in the same good direction the following days! I`m thinking of all of you, and spoke with aunt Ellen-Karin a few days ago, and will meet her again the 20th of November! I wish you all the very best! Give my love to Solveig! Love to all of you from Torill in Bergen.

From:	kellywaddell@hotmail.com
Date:	Sun Nov 9 17:36:39 2003
URL:	http://www.geocities.com/calebwaddell
Message:	We're still praying for you sweetie. Just keep fighting and knock that virus out.

From:	Margaret Ciacciarelli
Date:	Sun Nov 9 04:44:24 2003
URL:	http://www.Mighty-Max.com
Message:	Sophie, We hope you feel better soon and that you kick that virus out of your system. You can do it!

From:	judithsween@aol.com
Date:	Sat Nov 8 23:59:08 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie,I hope that you are feeling better soon.Please know that you have touched the hearts of all of us here in the USA.We pray for you daily.Please ask your parents to give you a gentle kiss on the cheek for us,as you are so loved.Keep up the good work Little One..Love from Chicago...Mighty-Max's Granny

From:	GACimarrusti@AOL.com
Date:	Sat Nov 8 05:05:05 2003
Message:	Hi Sophie, Anthony wanted me to let you know he's thinking about you!! We are glad to hear you are feeling better!! Love, Gina (Tony the Tigre's mom)

From:	michelle.flaherty@boimail.com
Date:	Fri Nov 7 09:25:14 2003
Message:	Hi Sophie, nice photos - you and your sis Amy make a good team. Keep up the good work. Love Michelle, John & James.

From:	Lisa Post ltjpost
Date:	Thu Nov 6 16:06:05 2003
Message:	Keep up the good work Sophie!

From:	Max's G-Pa J.
Date:	Thu Nov 6 11:41:21 2003
Message:	Glad to hear you are getting "cheeky" - that is really good. Keep it up kiddo.

From:	JUDITHSWEEN@AOL,COM
Date:	Thu Nov 6 05:45:57 2003
URL:	http://WWW.MIGHTY-MAX.COM
Message:	Sophie,We are all so happy and proud of you!!We love the new pictures and can't wait until you and Max meet.Keep up the good work beautiful Little One....Love and Hugs from Mighty-Max's Granny and family.

From:	Jan, Pat, Zoe, Joy and Winnie.
Date:	Wed Nov 5 22:02:10 2003
Message:	I love the new photo's, they are just lovely. Keep up the good work, nebulise for Ireland, England and Norway and remember Mummies, Daddies and Nurses are (mostly) for bouncing on, but Sisters should just be cuddled and loved. Love from us lot.

From:	kellywaddell@hotmail.com
Date:	Wed Nov 5 18:07:00 2003
URL:	http://www.geocities.com/calebwaddell
Message:	I'm so glad that you are doing so much better. We'll continue to pray for your progress and that the nasty virus goes away soon. Keep fighting sweetie!

From:	mauerstrasse13@freenet.de
Date:	Wed Nov 5 10:42:01 2003
Message:	So good to hear that Sophie is better! Emma was very impressed by the new photos, she says she wants to have dark eyebrows, too. Many greetings to you all from Germany, Ellen, Michael and Emma.

From:	Max's G-Pa J.
Date:	Tue Nov 4 23:52:13 2003
Message:	Hi Sophie, glad to hear you are doing well - keep up the good work.

From:	Alison
Date:	Tue Nov 4 17:33:25 2003
Message:	Sophie, Blonde or brunette, you're still gorgeous. Glad to hear things are remaining stable, maybe you'll be able to begin looking forward again soon. Love from us all, Alison, Peter, Ellie & Stacey

From:
Date:	Tue Nov 4 18:06:36 2003
Message:	Dear Sophie, Amy, Tina & Padraic Great to see the happy, smiling photos on the website and know that Sophie is improving. Best Wishes, Anne & Dave

From:	Shawn, Taylor, & ^^REESE^^
Date:	Tue Nov 4 13:28:50 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	I LOVE THE NEW PICTURES!!! She hasn't lost that great smile! Even her eyes light up... You definitley have an earth angel on your hands! Keep up the good work Sophie!! We love you very much!

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Tue Nov 4 03:56:02 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Sophie~ So glad to hear that you are doing well and hopefully nothing like your scare will ever happen again! I love the pictures of Sophie and her sister! They are both Beautiful girls! Love, Jennifer

From:	Margaret Ciacciarelli
Date:	Tue Nov 4 02:34:02 2003
URL:	http://www.Mighty-Max.com
Message:	Oh yes, we know those black eye brows well! Max even has a mustache to match! Glad to hear she is up and playing.

From:
Date:	Mon Nov 3 17:25:32 2003
Message:	Hi Sophie, I'm sure Amy worked a lot more magic than just on the taps when she came in at the weekend ! Maybe we should all take her lead and chant "Abracadabra" and see if we can't get some collective magic working for you! Give our love to your Mum, Dad and Big Sis. Lots of love, Dipak, Aarti, Karishma and Dilan P.S. Time for some new piccies Dad?

From:	mairebyrne@oceanfree.net
Date:	Mon Nov 3 12:17:41 2003
Message:	Hi all I am a relative of Padraics, my parents visited WIllie & Nora recently who gave them the website. I hope Sophie will soon be back home with you, she is a beautiful child. Regards to all M�ire Mullarkey Byrne

From:	Max's G-Pa J.
Date:	Sun Nov 2 18:31:01 2003
Message:	Peek-a-boo to you too.

From:	Gloria
Date:	Sun Nov 2 17:29:40 2003
URL:	http://www.smilequilts.com
Message:	Sophie, I hope this day finds you feeling better and beaming with that beautiful smile. You are in my thoughts and prayers Sweetie. Hugs, Gloria

From:	Dana Slevin (Max's Aunt)
Date:	Sat Nov 1 13:14:28 2003
URL:	http://www.mighty-max.com
Message:	Sophie - I am glad to hear that you are a little better after your big scare. Please know that we are still pulling for you adn thinking and praying for you every day! Much love and hope for a good day!

From:	Mighty Max
Date:	Sat Nov 1 05:08:36 2003
URL:	http://www.mighty-max.com
Message:	Sophie, Whether you have Halloween over there or not, I hope your day was Spooktacular and full of many more treats and not tricks. I'm so proud of you for being so strong. Now if you could just tell me what antibodies they have you on for your GVH, maybe I could use them too! Please don't have any more scares and take good care of your mummy and dad. I'm always thinking of you and I can't wait to trade memories with you one day.

From:	rossandra@bigpond.com
Date:	Fri Oct 31 08:00:51 2003
Message:	Hello Sophie I am a friend of your cousin Michaela in Perth in Australia and she has told me what a wonderful bright and brave little girl you are. I send my love that you may soon be well enough to go home with Mummy and Daddy Sandra Barton

From:	Max's G-Pa J.
Date:	Fri Oct 31 06:29:15 2003
Message:	Sophie, We hear that you were on the oscillator too - isn't that thing awful - would give you a headache - but i guess it works and does the job - Max has been on that thing a long time - it hurts just to watch that thing make a person bounce around - would give me an awful headache. Keep up the good work - and stay away from the GVH - it is nasty stuff.

From:	michaela@centralins.com.au
Date:	Fri Oct 31 07:24:45 2003
Message:	so glad to hear Sophie is improving, I don't blame her for throwing the foil either I reckon I would too. Such a brave little girl, keep up the fight. Love Michaela

From:	Max's Aunt Nancy
Date:	Fri Oct 31 02:38:10 2003
Message:	Hi beautiful!!! I'm so glad you're off the vent. Time to get rid of that nasty virus. Feel better soon sweetie!

From:	nicola.griffin@harriosn.org.au
Date:	Fri Oct 31 03:13:00 2003
Message:	Well I don't blame her for throwing that foil-she's been so tolerant & patient that she obviously needed to VENT!! It gave me a chuckle...I'm sure Sophie will start sucking her thumb again soon. Glad the rash is clearing up. Can she get cuddles yet? love Nicki

From:	Paul & Max/forandkerrigan@comcast.net
Date:	Fri Oct 31 01:43:20 2003
URL:	http://www.caringbridge.org/nj/maxforand
Message:	Hi Sophie and Family!! My son Max has Hurler's as well, and he's been on Aldurazyme for months. Hang in there, we'll be thinking of you. You are very brave!!

From:	kellywaddell@hotmail.com
Date:	Thu Oct 30 21:05:52 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Keep fighting little Sophie. We will be praying that you kick that nasty virus and that your blood pressure stablizes.

From:	Jeanne Joiner jeannejoiner@hotmail.com
Date:	Thu Oct 30 19:12:50 2003
URL:	http://www.caringbridge.org/ok/rileybear
Message:	It is amazing of how these little Hurler babies keep fighting. Keep up the wonderful work! Lots of hugs, kisses and prayers. xoxoxoox......Jeanne

From:	Cathy Peters
Date:	Thu Oct 30 16:49:33 2003
URL:	http://www.caringbridge.org/canada/isobel
Message:	Way to go Sophie- you little fighter!!! Thinking of you and praying for you all!! Love, Cathy

From:	Alison
Date:	Thu Oct 30 15:45:38 2003
Message:	Tina and Padraic, It's fantastic to see how well, and how quickly, Sophie has recovered from this episode. She is so strong and full of life that she is an inspiration to us all, and so are you both as her wonderful parents. Keep up the great work. Love from us all, Alison, Peter, Ellie & Stacey

From:	nicola.griffin@harrison.org.au
Date:	Thu Oct 30 12:09:57 2003
Message:	I can't imagine anything more frightening than what you've all been through. There must have been such a mixture of emotions from fearing the worst to elation and then back to reality when you heard about Sophie's virus. All of my best wishes and love are sent your way and I hope that Sophie's virus clears up ASAP. It's lucky it was detected early. It's great to hear how fantastic and responsive the nurses have been and that they genuinely care for the children they work with. Thinking of you all, love Nicki

From:	carolynj52@ilovejesus.net
Date:	Thu Oct 30 06:51:23 2003
URL:	www.quiltsoflove.com
Message:	I'm so glad that Sophie is doing better...What a scare.. I'd like to extend an invitation to you to visit Quilts of Love when you have time..At Quilts of Love we're a group of grammies and mommys who love to make children smile so we make online virtual quilts for children with long term or lifelong illnesses..We'd be honored to make Sophie a quilt of her very own...Hugs Carolyn www.quiltsoflove.com

From:	Lisa Post ltjpost
Date:	Thu Oct 30 02:36:42 2003
Message:	Phew! Sophie, please do not scare us like that again!!! I'm so very relieved that you recovered quickly and smoothly. Keep up the good work...and NO MORE SCARES!!!

From:	kellywaddell@hotmail.com
Date:	Wed Oct 29 22:19:18 2003
URL:	http://www.geocities.com/calebwaddell
Message:	You are such a strong little girl Sophie. We are keeping you in our thoughts and prayers. Just continue to heal.

From:	dianeshawe@aol.com
Date:	Wed Oct 29 18:16:00 2003
Message:	Love and kisses to you all, thinking of you and saying our prayers for you. Love Diane & jjjjaaaaaaaaaaaaaccccckkkkkkkkkkkkkkkk xxxxxxxxxx

From:	Padraic
Date:	Wed Oct 29 09:12:27 2003
Message:	Sophie went back to her room yesterday. Her blood pressure is still a concern and she has been examined by a renal consultant. More worryingly she has a virus. It was found in the sample of liquid taken from her lungs on Friday. She started a course of treatment for the virus yesterday. I will hopefully update the main site tonight.

From:	michaela@centralins.com.au
Date:	Wed Oct 29 07:08:30 2003
Message:	So glad to hear Sophie is off the ventilator, what a little fighter. She is certainly one tough little cookie. All our love and prayers are directed your way. love Michaela

From:	Alison, Peter, Ellie & Stacey
Date:	Tue Oct 28 23:12:48 2003
Message:	Glad to hear that Sophie is off the vent, what a little fighter she is. I hope you can put this scare behind you and get a little rest yourselves now. Love from us all.

From:	jchick@ncia.net
Date:	Tue Oct 28 17:06:42 2003
Message:	Hi Sophie and family--I am Max's Grandma Chick and check on you often. This is the first time I have been able to access your guestbook. Having seen how Max is fighting, I am sure that Sophie is fighting equally hard. All of the Hurler kids I have met have such determination and resolve. Continued good wishes come your way. Glad to hear you are off the vent. Love from Grandma Chick

From:	Shawn, Taylor & ^^REESE^^
Date:	Tue Oct 28 15:22:20 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	YEAH Sophie... I'm so glad to hear you're getting better. I needed some good news! You've made my day! Love you sweetie pie!

From:	JUDITHSWEEN@AOL>COM
Date:	Tue Oct 28 13:53:11 2003
URL:	http://www.mighty-max.com
Message:	Great job Sophie,We are all so proud of you.Keep fighting Little One!!!You are an amazing child.We will keep the prayers coming....Love from Mighty-Max's Granny

From:	Max's Aunt Dana
Date:	Tue Oct 28 14:45:41 2003
URL:	http://www.mighty-max.com
Message:	Way to go Sophie! I am so glad to read that you are off the vent. Keep gaining strength and know that you are loved and prayed for every day! Love from Chicago Slevins!

From:	nicola.griffin@harrison.org.au
Date:	Tue Oct 28 14:09:50 2003
Message:	Hi Sophie, You are such a beautiful & expressive looking little girl- your fighting spirit and determination really touched me and I am looking forward to meeting you in December. Take good care of yourself, Love Nicki OOO (Big Hugs)

From:	Margaret Ciacciarelli
Date:	Tue Oct 28 11:16:04 2003
URL:	http://www.Mighty-Max.com
Message:	Good job Sophie. This is what we all wanted to hear. Keep it up!

From:	Jan, Pa, Zoe and Joy
Date:	Tue Oct 28 12:00:27 2003
Message:	It's great to hear that you are getting out of intensive care and back to your room. Thanks for keeping us up to date, it means a lot. Love from Jan.

From:	Padraic
Date:	Tue Oct 28 11:37:24 2003
Message:	Sophie came off the vent at 4:00pm yesterday. She had a quite night and is much more alert today. Her additional IV lines will be removed and we plan to leave the Intensive Care Unit at 2:00pm this afternoon. I will continue to update the guestbook until I get back home. Padraic

From:	djharding@aegislimited
Date:	Tue Oct 28 10:47:45 2003
Message:	Hi guys, Just read about the dramas and am glad that everything is improving. Been away for a few weeks but monitored the site regularily from Aussie. Hope you are both coping and send all my love to Sophie. Keep fighting. Derek

From:	dcpendleton@rogers.com
Date:	Tue Oct 28 02:36:43 2003
URL:	http://www.kassiescourage.com & www.caringbridge.org/ca/kassiescourage.com
Message:	Hi...this is my first time to this site!! What a beautiful little girl you have!! May you hold her close to your heart!!! I hope that she is doing much better today. I am also part of the MPS family. You canread about Kassidy on her sites. I will keep you all in my prayers and thoughts. Carol from Canada

From:	jcorrigan@sau20.org
Date:	Tue Oct 28 02:23:07 2003
Message:	Hi Sophie and Family. We are friends of Max and wanted you to know that here in New Hampshire (USA) we are also holding you in our thoughts and prayers. Keep fighting. -- Bob & Jackie Corrigan

From:	jkm@crystalisland.com
Date:	Tue Oct 28 02:09:59 2003
URL:	http://www.crystalisland.com
Message:	I blew it. Forgot to tell you what a cute little girl you are. God bless!

From:	jkm@crystalisland.com
Date:	Tue Oct 28 02:08:08 2003
URL:	http://crystalisland.com
Message:	You are in our thoughts and prayers. May Jesus heal you swiftly little one. Love from the McClellands

From:	jennybirm@comcast.net
Date:	Tue Oct 28 02:35:11 2003
URL:	http://www.missmollyb.com
Message:	Dear Sophie, We are thinking of you, and praying for a full recovery. Continue to show us your strength. We love you! Jenny, John, TJ, and Molly Birmingham (USA)

From:	leentje93@hotmail.coml
Date:	Mon Oct 27 19:58:01 2003
URL:
Message:	Sophie, you're in my thoughts. Take care. Hugs and kisses from Yasmine's aunt, Leen.

From:	jackie.oconnor@gs.com
Date:	Mon Oct 27 17:11:16 2003
Message:	Thinking of you today. Glad we saw you on Friday and so happy that Sophie is improving. We keep in touch via Dublin rather than calling you all the time. Love Jackie

From:	Saggarwal@home7010.fsnet.co.uk
Date:	Mon Oct 27 16:48:40 2003
Message:	HI Tina and Padriac, just saw the news abouth Sophie's latest scare. Bhavna will be at Gosh on Wednesday to meet you guys. We just wanted to let you know that we are praying for you all. It is very hard, but try to keep your spirits up for Sophie. Love from Sanjay, Bhavna, Lakshmi and Ginni !!!!

From:	Dipak, Aarti, Karishma & Dilan
Date:	Mon Oct 27 10:50:49 2003
Message:	I've just looked at the site today and seen the latest re Sophie's scare. Thank god for Tina's presence of mind and the rapid response of the Doctors and nurses. It must be a really tough time for you all. As always we're here if you need, and you're always in our prayers. Sophie you're one tough little cookie - keep it up my sweet..... Lots of love, Dipak, Aarti, Karishma, Dilan

From:	mauerstrasse13@freenet.de
Date:	Mon Oct 27 11:12:40 2003
Message:	Hi Tina and Padraic, what a scare! So good to hear that Sophie is making progress. We keep her and her family in our prayers. Michael and Ellen.

From:	tina@melroseroad.co.uk
Date:	Mon Oct 27 10:42:27 2003
URL:	http://www.melroseroad.co.uk
Message:	Sophie had a good night and is on the lowest setting for the vent. She had chest X-ray today but we have not had the results yet. Blood pressure is still an issue but being monitored. She is more awake this morning and I am not sure but I think she raised her arms to me this morning when I came in. She is currently holding blanket and as she cannot suck her thumb she putting it as near to her mouth as possible, last night in her nose. Tina x

From:	jackie@padrefoundation.org
Date:	Mon Oct 27 08:06:35 2003
URL:	http://caringbridge.org/page/susannah
Message:	Sophie is quite a fighter, My little grandaughter fought hard like you and won. So can you. You are such a precious little one. Susannah White's Grammy

From:	Max's Aunt Dana
Date:	Mon Oct 27 03:31:12 2003
URL:	http://www.mighty-max.com
Message:	Sophie -- Wow, what a scare. I am so glad that the doctors and nurses (and mommy) responded so quickly to your breathing problems. I hope that you are on the road to a quick recovery from this! Know that you are in our thoughts and prayers! The Slevin family, Chicago, IL USA

From:	jacon@shaw.ca
Date:	Mon Oct 27 01:29:52 2003
URL:	http://www.caringbridge.org/canada/isobel
Message:	Thinking of you Sophie and praying for you all! Thank God you are alright and hopefully off the vent today!! Cathy Peters

From:	Max's cousin jenny
Date:	Mon Oct 27 01:04:06 2003
Message:	Just a little note to let you know we are praying for you.

From:	michaela@centralins.com.au
Date:	Sun Oct 26 23:55:42 2003
Message:	Sophie be strong little one. We are all with you and thinking of all of you. Good to hear sophie is a little stronger. Love Michaela and all your family in Aus.

From:	Shawn, Taylor, & ^^REESE^^
Date:	Sun Oct 26 19:33:37 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	Oh Sophie - I pray that you recover and come off the vent soon. I know it's no fun for mommy and daddy to see, either. Please get better soon. We all love you soooo much!!! Hugs and Kisses from North Carolina!!!

From:	Max's G-Pa J.
Date:	Sun Oct 26 19:05:32 2003
Message:	Glad to hear you are getting well again - quite a scare. Say hi to your mum and dad.

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Sun Oct 26 16:58:44 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Sophie! Oh, it sounds like you guys had quite the scare! I'm so releived that she seems to be recovering. Hang in there, there are many many prayers going out for Sophie every day! Love, Jennifer

From:	arhimes@msn.com
Date:	Sun Oct 26 16:02:57 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	Dear little Sophie, What is going on? I am so worried to even check on little Max these days only to find out that it is you I maybe should worry about more. I was so surprised to read what an awful time you had. Do the dr. give reasons that this might have happen?? Is it from the fluid or don't they know? I will be checking in often and praying for you. Be strong and heal. Love, Anne

From:	Padraic
Date:	Sun Oct 26 15:56:38 2003
Message:	Sophie continues to do well. She has been awake and is looking around. She is still quite groggy but hopefully she will be more alert once the sedatives wear off. She is scheduled to be extubated tomorrow afternoon, she will have a chest X-ray and be examine by a nuerologist before extubation to ensure she is ready. I will update the guestbook again tomorrow.

From:	Max's Uncle Art and Aunt Carol
Date:	Sun Oct 26 12:41:54 2003
Message:	Sophie, We're so glad you rebounded well from the latest crisis. Sending lots of love to you and to children everywhere who's strength and courage is tested in this way. Best wishes from New Jersey, U.S.A.

From:	joano@eircom.net
Date:	Sun Oct 26 10:09:51 2003
Message:	Good morning to Padraic, Tina and Sophie, thank God Sophie you are pulling through your hipcup!!, you are a very strong little girl with a big smile, you are always in my thoughts and prayers, love Auntie Joan

From:	Lisa Post ltjpost
Date:	Sun Oct 26 02:04:50 2003
Message:	My goodness Sophie! You have scared us all! Be strong as I know you are. I hope you made significant progress today! I am praying for you!!!

From:	JodiHeiss@hotmail.com
Date:	Sun Oct 26 02:03:16 2003
Message:	Sophie - so glad to hear that you are recovering from your scare. We are friends of Mighty-Max and we know how strong you Hurler kids are! Keep up the good fight! Sending love from Chicago - Jodi and family

From:	Judie Sweeney
Date:	Sat Oct 25 22:20:22 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie, My thoughts, prayers, and love go out to you.I know that you have the same strength and courage as our Mighty-Max.Keep fighting beautiful little one!!Sending Love, Hugs, and Kisses from Chicago...Max's Granny

From:	Katie Sweeney
Date:	Sat Oct 25 23:10:27 2003
URL:	http://mighty-max.com
Message:	Dear Sophie, My prayers go out to you and your family. You are so strong and I know that you can make it through anything. You are the perfect girl for my nephew Mighty-Max. I send all my love. Katie

From:	Margaret Ciacciarelli
Date:	Sat Oct 25 17:59:52 2003
URL:	http://www.Mighty-Max.com
Message:	I could not believe it when I read your update this morning. I am so sorry this happened. Glad to hear things are moving in the right direction. We are pulling for you Sophie!

From:	Mike Ciacciarelli
Date:	Sat Oct 25 16:05:03 2003
URL:	http://www.mighty-max.com
Message:	Padraic, Tina, and especially sweet Sophie, What a scare. From a family that has been there and is there now, please know that you can trust in two things: Your love is as strong as any medicine Sophie can get, and Sophie is much stronger than this kind of episode indicates. You will hear it again and again that these Hurler kids have tremendous resilience and strength, and we have seen it with our own eyes. Sophie will not quit, you will not quit, and you can be sure your doctors and nurses won't either. Our hearts go out to you all for a speedy recovery. She has made amazing progress already, you should be so proud and celebrate her ability to rebound. She can do it! Sending all the love we can from Minnesota, USA.

From:	Alex, Anneleen & Yasmine Verbinnen
Date:	Sat Oct 25 14:25:22 2003
URL:	http://www.verbinnen.net
Message:	Following yours and Max's website we are way overdue for some really good news now. :-( Hang in there guys, we know from experience our Hurler kids are extremely tough and resilient, and they have the ability to recover from just about everything. Sophie is strong, and she will make it through all this. Cherish her and love her with all your heart - there is no medication that can beat that. We are all rooting for Sophie, and know that Hurler families around the world are one big family. Stay strong. Love, Alex, Anneleen & Yasmine

From:	Jan, Pat, Zoe and Joy
Date:	Sat Oct 25 13:50:17 2003
Message:	Hang in there guys, we're thinking of you. Love from us lot.

From:	Kate
Date:	Sat Oct 25 09:08:59 2003
URL:
Message:	Padraic & Tina. We are so glad that Sophie has had a good night and is recovering well. Kate & Tony xx

From:	Angela
Date:	Sat Oct 25 09:00:21 2003
Message:	Padraic & Tina, I'm glad to hear that Sophie is getting a little better. I hope she gets off the vent quickly and is soon back on the road to recovery. Angela xxx

From:	Padraic
Date:	Sat Oct 25 08:50:21 2003
Message:	Sophie had a good night. She came off the oscillating vent yesterday evening and has been on the normal vent all night. Her body is recovering from the cardiac arrest and all her gas levels (oxygen etc) are improving all the time. From this morning the vent settings have been changed to allow Sophie to breathe for herself and will only "kick in" if she doesn't breathe or her breath is shallow. The plan is to slowly reduce the amount of help Sophie gets from the vent today with a view to extubating her tommorrow. While we are both here we will use the guestbook to update Sophie's progess.

From:	Ellie's Gran and Grandad
Date:	Sat Oct 25 00:26:15 2003
Message:	We have just seen the message from Padraic, and we wish you all the strength to meet this next challenge with hope, and send special love to Sophie.

From:	Kate
Date:	Fri Oct 24 23:23:21 2003
URL:
Message:	Padraic and Tina - today must have been a truely terrible day for you. Our thoughts & prayers are with you all. Rosie & Anna send their hugs & kisses too. Kate & Tony xxx

From:	Padraic
Date:	Fri Oct 24 18:41:42 2003
Message:	Sophie had a cardiac arrest at 4am today and stopped breathing. She was rushed to the intensive care unit where she was put on a heart machine and ventilator. During the morning she came off the heart machine and her heart continued to beat on its own. The cause is not yet known and the intensive care staff have been working throughout the day to monitor Sophie's progress. It may have been due to a build up of fluid in the body. She is still in the intensive care unit and is being closely monitored. It has been a very difficult day for us. We will update the site with more information when we get a chance. Padraic & Tina

From:	kellywaddell@hotmail.com
Date:	Fri Oct 24 16:42:21 2003
URL:	http://www.geocities.com/calebwaddell
Message:	I'm glad Sophie is doing so well. She remains in our thoughts and prayers!

From:	Kate
Date:	Fri Oct 24 09:51:56 2003
URL:
Message:	Sophie - you are never far from our thoughts - you are such a brave little girl. Padraic and Tina - stay strong - we are all thinking and praying for you and your family. Kate & Tony xxx

From:	Martyn
Date:	Fri Oct 24 09:25:13 2003
Message:	Having seen the story unfolding from the website I can only surmise that Sophie's greatest asset is her Parents. She is so lucky to have such a strong family to support her. My family wishes your family all of the very best for the future.

From:	Alison
Date:	Wed Oct 22 22:18:38 2003
Message:	Sophie, Sorry that the GVH is causing you so much trouble. We hope that you'll be able to get cuddles from Mum and Dad again tomorrow. Love to you all, Alison, Peter, Ellie & Stacey

From:	Margaret Ciacciarelli
Date:	Wed Oct 22 16:40:11 2003
URL:	http://www.Mighty-Max.com
Message:	Sophie, we know how awful GVH can be and our hearts go out to you. We are hoping and praying that your new cells find peace within you. Thinking of you every day, The Ciacciarelli Family

From:	Shawn, Taylor, and ^^REESE^^ Coble
Date:	Tue Oct 21 16:25:06 2003
URL:	http://www.caringbrige.org/nc/reesecup
Message:	Sophie - I'm sorry you're feeling so lousy. I pray your GVH clears up soon. The bright side, tho, is that it's working!! Praise the LORD!! I hope you're back to your happy self soon. I know mommy and daddy miss your smiles. We all love and are pulling for you.... Hang in there, sweet baby Sophie...

From:	Max's Aunt Nancy
Date:	Tue Oct 21 14:27:10 2003
Message:	Sophie, I'm still hoping and praying that you feel better soon. I wish those new cells weren't giving you such a hard time. Stay strong little one.

From:	mauerstrasse13@freenet.de
Date:	Tue Oct 21 13:48:48 2003
Message:	Dear Tina, Padraic, Amy and Sophie, This website is amazing!! Such a good way of keeping in touch. I wasn't sure if I should call you, thinking that you would probably be inundated with calls from friends and family and I am so glad to communicate this way and to find out about how Sophie is doing. I must have spent over an hour reading your entries, Sophie is such a brave girl. We keep our fingers crossed that the antibody treatment will work quickly and that you'll be soon a family again. Thank you for putting so much work into this website, it's so helpful to understand more about the illness and what you must be going through. Thinking of you all, stay strong! Michael, Ellen and Emma from Duesseldorf.

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Tue Oct 21 04:22:39 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Sophie, sorry to hear you have been feeling under the weather! Those Molars are a pain! I wanted to let you knoe that we are still checking on you and pray for you daily! Love, Jennifer Restemayer

From:	Max's G-Pa J.
Date:	Mon Oct 20 21:54:55 2003
Message:	Hang in there you guys.

From:	kellywaddell@hotmail.com
Date:	Mon Oct 20 16:50:11 2003
URL:	http://www.geocities.com/calebwaddell
Message:	You remain in my thoughts Sophie. I'll be praying that the antibodies kick the GVHD out and that your blood pressure goes back to normal soon. Caleb had to take blood pressure medication while he was on steroids too, but he was fine afterwards.

From:	Alison
Date:	Mon Oct 20 13:09:27 2003
Message:	It's good to hear that the change of treatments should sort out Sophie's GVHD and blood pressure. We are praying for it to work fast so that you can start to think about coming home soon. Ellie has been playing at going to visit Sophie in hospital for a while now! Love to you all, Alison, Peter, Ellie & Stacey

From:	Max's G-Pa J.
Date:	Sun Oct 19 22:14:01 2003
Message:	Hey Sophie - Cutting a new tooth - good girl. Hang in there - hope you can beat that GVH soon - say hi to your mum and dad. Have a good day.

From:	joano@eircom.net
Date:	Sun Oct 19 14:09:01 2003
Message:	Hi Sophie, every day we think of you and you are always in our prayers along with Amy, Daddy and Mammy Lots of love from all your Irish Aunties Joan

From:	Pat, Jan, Zoe and Joy
Date:	Sun Oct 19 07:43:40 2003
Message:	Sophie keep on fighting, you will feel better soon, here is a great big e-hug for you, here is an e-tickle for Amy, an e-guiness for Padraic, some e-matchsticks and an e-blue curacao and lemonade for Tina (be careful with that one though Tina because I might have accidentally sent some e- rummygrout - sorry can't spell it, but can still remember the taste well) Love from us.

From:	Ramzi, Amanda, Patrick and Naomi
Date:	Sat Oct 18 21:58:31 2003
Message:	Sophie, Not a day goes by without us thinking about you. We know you're going to win through, with that fighting spirit and all the love you're getting from your Mum and Dad and little sis. Love from all the Shammas family

From:	JUDITHSWEEN@AOL.COM
Date:	Sat Oct 18 16:31:30 2003
URL:	http://www.mighty-max.com
Message:	Hi Sophie,Keep up the good fight little one and get well soon.Prayers are going up for all the special Hurler Babies..Love from across the ocean..Max's Granny

From:
Date:	Sat Oct 18 00:41:26 2003
URL:	http://s mcphee2003@ROGERS.COM .
Message:	HELLO SOPHIE, MOM AND DAD ,JUST WANTED TO LET YOU KNOW I THINK ABOUT YOU ALL THE TIME ,SENDING LOTS OF LOVE AND PRAYRES, PLEASE GIVE SOPHIE A KISS FOR ME LOVE STELLA CARTERS GRANDMA ,XO XO

From:	Max's G-Pa J.
Date:	Fri Oct 17 16:39:24 2003
Message:	Hey cutie - I hear you are under the weather - chin up and take care - say hi to your mum and dad.

From:	Tasha tgraff@bowdoin.edu
Date:	Fri Oct 17 16:42:25 2003
URL:	http://www.mighty-max.com
Message:	Stay strong, beautiful.

From:	Max's Aunt Nancy
Date:	Fri Oct 17 16:23:16 2003
Message:	Sophie, feel better soon! I'm praying for you and your doctors. I hope they can get that nasty GVHD under control soon. Hugs & Kiss

From:	Tracy and Sophia Ashley (Max's Friends)
Date:	Fri Oct 17 15:31:46 2003
Message:	What a beautiful little girl and pretty name! You are in our thoughts and pray for you to feel better.

From:	kateloosian@hotmail.com
Date:	Fri Oct 17 14:34:46 2003
Message:	Sophie, Mighty Max's parents tell us you're feeling a bit under the weather-hang in there, our prayers abound for all you darlings fighting this fight. We are thinking of you. -The Loosians from Boston MA

From:	JUDITHSWEEN@AOL>COM
Date:	Fri Oct 17 14:06:54 2003
URL:	www,mighty-max.com
Message:	Hi Sophie,I hope that you are feeling better soon.Sending all our prayers and love from Chicago...Mighty-Max's Granny

From:	michelle.flaherty@boimail.com
Date:	Fri Oct 17 10:12:32 2003
Message:	Hi Sophie, hope you have a good day. You are some kid for one kid! Thinking of you. John, James & Michelle XXX

From:	Dipak, Aarti, Karishma & Dilan
Date:	Fri Oct 17 08:20:01 2003
Message:	Sophie, You're one tough little cookie that's for sure and with such a wonderful temperament. Keep smiling that wonderful smile and start working that 'get well' magic ! Lots of love, Dipak, Aarti, Karishma and Dilan

From:	Margaret Ciacciarelli
Date:	Thu Oct 16 21:08:15 2003
URL:	http://www.Mighty-Max.com
Message:	Sophie, We are hopeful you will be feeling better soon. We are thinking of you in the U.S.

From:	Lisa Post ltjpost
Date:	Thu Oct 16 17:08:38 2003
Message:	Hoping Sophie's fever goes away and nothing serious brewing. She's very strong!

From:	mmchick@comcast.net
Date:	Thu Oct 16 09:10:22 2003
URL:	http://www.mighty-max.com
Message:	Padraic & Tina, Just catching up on all your news . . . you guys are doing a great job caring for Sophie. One of the residents here told us early on that "it's a marathon, not a sprint" and boy has that been true. Just keep repeating it over and over when you think you've been at the hospital too long. Keep it up Sophie! You are such a little beauty!

From:	Naomi Shammas
Date:	Wed Oct 15 19:30:25 2003
Message:	I hope all goes well at your tests lots of love Naomi

From:	Margaret Ciacciarelli
Date:	Tue Oct 14 21:19:14 2003
URL:	http://www.Mighty-Max.com
Message:	We hope you feel better soon and that the results from the biopsies are good.

From:	Elizabeth
Date:	Tue Oct 14 18:55:19 2003
Message:	to baby Sophie I hope you get better sone luf from Elizabeth I am 5 yias old

From:	aafarrell@aol.com
Date:	Tue Oct 14 14:40:45 2003
Message:	Hello there from America. My friend Ramzi Shammas sent me your website link and my daughter M�abh and I just wanted to write to you and send your our best wishes for a speedy recovery. You look like a wonderful little girl, who M�abh would have fun playing with and we will keep you in our prayers and hope that you soon will feel as right as rain. Take care and we send loads of cuddles to your family as well. All the best, Alice Farrell New York City

From:	Max's G-Pa J.
Date:	Mon Oct 13 22:43:36 2003
Message:	Sophie - you are a great kid - but so is Max - it seems all of the Hurler kids are really neat kids - good luck with the tests - and tell mum and dad hi.

From:	Alison
Date:	Mon Oct 13 16:01:47 2003
Message:	Sophie, Good luck with the biopsies, we're all thinking of you. It's great to hear that your sight and hearing are improving. Stay strong, we miss you all. Alison, Peter, Ellie & Stacey

From:	Kate
Date:	Mon Oct 13 13:11:46 2003
URL:
Message:	Hi Sophie, Hope the biopsies go ok. Glad you were able to be a family again at the weekend - thinking of you all - stay strong. Kate xxx

From:	Max's G-Pa J.
Date:	Sat Oct 11 21:40:35 2003
Message:	Looks like Sophie will learn a lot about soccer soon.

From:	Jean & bernie
Date:	Fri Oct 10 23:31:25 2003
Message:	Hi Sophie Glad to see you are doing well. Keep up the great work in getting better. Nice to see both girls on the photo as they look woderful together. love& best wishes Jean & bernie xx

From:	Jan, Pat, Zoe and Joy
Date:	Fri Oct 10 10:54:26 2003
Message:	Nothing beats a good Pingu video and a bag of wotsits! Loves of love from us lot. xxx

From:	daria99@bigpond.com
Date:	Fri Oct 10 10:43:21 2003
URL:	http://www.users.bigpond.com/daria99
Message:	Hello Just wanted to say hi from Brisbane, Australia. My husband and I have a little girl named Daria who has Hurlers. Shs is 4 years old and also 2 years post transplant. If you ever want someone to talk to, please email us. We also have a website about our experiences since Daria's diagnosis at the age of 7 months. www.users.bigpond.com/daria99 Best wishes. I know how exhausting those first mometns after transplant seem, but it is all worth it. Bye for now Trina, Doug, Daria and Caleb Ward.

From:	Lisa Post ltjpost
Date:	Thu Oct 9 23:14:37 2003
Message:	Glad to hear Sophie continues to do well. I can just picture her waving to everyone outside her room! Such a cutie!

From:	Max's G-Pa J.
Date:	Thu Oct 9 22:23:16 2003
Message:	Well Sophie - sounds like things are going well - the docs say your eyes are clearing - good bye nasty mucopolysaccarides!!! Keep up the good work - and we'll visit again - tell your dad and mum hi.

From:	Max's G-Pa J.
Date:	Thu Oct 9 23:14:07 2003
Message:	Well Sophie - sounds like things are going well - the docs say your eyes are clearing - good bye nasty mucopolysaccarides!!! Keep up the good work - and we'll visit again - tell your dad and mum hi.

From:	Kelly Chandler
Date:	Thu Oct 9 16:57:17 2003
Message:	I love the photo of Sophie eating Wotsits, such concentration. Its good news that you are all back together again as a family. I hope Sophie's progress continues as it has been, shes a strong girlie. xxxx

From:	kellywaddell@hotmail.com
Date:	Thu Oct 9 15:26:26 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Sophie remains in my thoughts. I am praying that the doctors find the cause of her problems and they are not serious.

From:	Max's G-Pa J.
Date:	Thu Oct 9 00:12:47 2003
Message:	Hi Sophie, Keep on going - and let your mum and dad go out for dinner once in a while.

From:	srussell@gmc-uk.org
Date:	Wed Oct 8 14:53:35 2003
Message:	I'm glad to hear Sophie is doing so well and it was a success. I hope the side effects clear up soon. Great to see Amy and Sophie together. Look forward to seeing you all soon. Love Sally

From:	Ramzi
Date:	Wed Oct 8 10:09:02 2003
Message:	Guys, we're all rooting for you. I can only imagine how tough this is for you day to day but I'm sure you will pull through - Sophie seems one tough cookie. All our love The Shammas family

From:	Max's Dad
Date:	Wed Oct 8 08:20:51 2003
URL:	http://www.mighty-max.com
Message:	Padriac & Tina, Please don't get too down. Just look at your pictures! The new photos are wonderful and inspirational and beautiful. Your daughters are terrific sisters and to see them sitting together is so awesome. We know first-hand what it's like to be dealing with gvhd and it's no fun for you or Sophie. But her counts are still great, she's still eating Wotsits, so please don't lose faith. You are excellent parents and Sophie is a brave and strong and full of your love. She is going to beat this!

From:	Lisa Post ltjpost
Date:	Tue Oct 7 23:46:44 2003
Message:	Love the new pictures! The girls are so cute together! Love the hugging photo the best! I pray Sophie's little issues are straightened out soon. Try not to worry...as hard as that is! She's a real toughie!!!

From:	JUDITHSWEEN@AOL>COM
Date:	Tue Oct 7 17:01:33 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie,Love the new pictures!You and your sister are beautiful.I'm so happy to see you doing well and eating wotsits.Keep up the good work.Prayers and love from Chicago..Mighty-Max's Granny

From:	Dipak, Aarti, Karishma & Dilan
Date:	Tue Oct 7 10:25:37 2003
Message:	Its really fantastic to see the sisters together again! Looks like they both had a great time ! I don't know much about the drugs and treatments, but those Wotsits are working an absolute treat!! Keep it up 'Super Sophie' ! -x-x-

From:	Max's cousin jenny
Date:	Tue Oct 7 02:52:45 2003
Message:	Hi Sophie and family, Glad to see you are doing so well. Love the wotsits pictures. Your children are beautiful. They looked thrilled to be back together. Take care, jen

From:	Max's G-Pa J.
Date:	Mon Oct 6 22:49:23 2003
Message:	Sophie, Those wotsits look something like Cheetos to me - We call them cheese puffs over here. I like them too. Can't stop eating them when I start - they are yummy. And your hands turn all orange - and they get all over your clothes!!! And they stick in your teeth. But they are fun. Glad you are doing well. Say hi to your dad and mum.

From:	Beth Micucci (Max's Aunt)
Date:	Mon Oct 6 21:17:29 2003
Message:	Glad you got to spend time together as a family. Thank you for supporting Max and our family. Sending much love from the USA.

From:	Margaret Ciacciarelli
Date:	Mon Oct 6 15:41:13 2003
URL:	http://www.Mighty-Max.com
Message:	So glad to hear you were all together as a family again! What a wonderful thing.

From:	kellywaddell@hotmail.com
Date:	Mon Oct 6 16:26:11 2003
URL:	http://www.geocities.com/calebwaddell
Message:	I am so glad that Sophie is doing good and you got to have your children together again. I know that meant alot to you both. Sophie remains in our thoughts and prayers.

From:	Mike (Wrestler)
Date:	Mon Oct 6 15:30:11 2003
Message:	What wonderful news, I am so happy for you all and hope that the good news keeps coming. Keep it up Sophie... All the best Mike

From:	michaela@centralins.com.au
Date:	Mon Oct 6 09:46:03 2003
Message:	How wonderful to spend the day together yesterday. You are amazing Sophie and your family in Aus are thinking of you daily. Love Michaela

From:	Kate
Date:	Mon Oct 6 07:44:02 2003
URL:
Message:	That's really great that you all got to spend the day together yesterday. I'm glad everything is heading in the right direction - Sophie you are an amazing little girl. Kate xxx

From:	Angela
Date:	Sun Oct 5 20:49:08 2003
Message:	Sophie, you are such a clever girl - you are getting well so quickly. Keep up the good work! Love Angela

From:	jchick@ncia.net
Date:	Sun Oct 5 17:09:11 2003
Message:	Hi Sophie and family--I am Max's Grandma Chick and check on your often. Thank you for all your support to us "across the pond". Stay strong. You are toooooo cute.

From:	Jan, Pat, Zoe and Joy
Date:	Sun Oct 5 07:44:20 2003
Message:	Keep up the good work - lets hope that the H word is looming. It must be hard now because the magic 100% has been reached but you still have to keep on going and there is still a lot of healing and growing to be done. We're still thinking about you lot all the time and still checking each day to see how you are doing. Lots of love, Jan, Pat, Zoe and Joy

From:	JUDITHSWEEN@AOL.COM
Date:	Sun Oct 5 03:37:29 2003
URL:	http://www.mighty-max.com
Message:	Sophie,you are such a beautiful and strong little girl that I know you are going to be feeling better soon.sending all my love and prayers from Chicago...MIGHTY-MAX'S Granny

From:	Angela
Date:	Sat Oct 4 22:52:43 2003
Message:	Padraic & Tina, Sophie & Amy, it must be so hard not to be able to be together as a family. I pray that Sophie will get over the GVHD and get strong quickly so you can all be together soon. Love Angela

From:	Max's G-Pa J.
Date:	Sat Oct 4 05:57:43 2003
Message:	Hi Sophie - let's beat that nasty GVHD and get on with it - you must - tell your mum and dad hi.

From:	Jeanne Joiner / jeannejoiner@hotmail.com
Date:	Sat Oct 4 04:47:42 2003
URL:	http://www.caringbridge.com/ok/rileybear
Message:	I just wanted to stop by and say hi. Our son Riley had two BMT's last year for Hurlers. He is 16 months out and is doing great. Sophie...you are such a cutie and are doing such a wonderful job. Mommie & Daddy...watch out, these little hurler babies will keep amazing you! Keep up the good work. May God Be With You. xoxoxoxox.......Jeanne

From:	Margaret Ciacciarelli
Date:	Sat Oct 4 02:11:43 2003
URL:	http://www.mighty-max.com
Message:	Sophie, We are praying you do not have GVHD. Keep on fighting little one!

From:	kellywaddell@hotmail.com
Date:	Fri Oct 3 20:35:28 2003
URL:	http://www.geocities.com/calebwaddell
Message:	We'll be praying that the problems Sophie is having are not caused by GVHD and that she will be getting better soon. Stay strong sweetie! Hope Tina is feeling better. :)

From:	michaela@centralins.com.au
Date:	Thu Oct 2 05:33:58 2003
Message:	Hi to all just to let you know that we in Aus are following your progress and thinking of you. Great news that the H word is being hinted at. love Michaela.

From:	Kelly Waddell
Date:	Wed Oct 1 15:04:36 2003
URL:	http://www.geocities.com/calebwaddell
Message:	You are doing so wonderful Sophie!!! Keep it up. I know your Mommy and Daddy can't wait for the day when they can take you home. You remain in all of our prayers!

From:	Lisa Post ltjpost
Date:	Tue Sep 30 23:13:57 2003
Message:	Yeah Sophie! You are doing so well!!! Keep up the good work sweetie!

From:	torillhammer@c2i.net
Date:	Tue Sep 30 22:01:55 2003
Message:	Hello Tina, and all of you! It was fantastic to read about the positive news written about Sophie, on this last evening of September! Thinking of going home in a few weeks, must be a REALY, REALY good feeling, for all of you, and I wish you all the very best, for the folloving days and weeks! I am still reading from day to day, and it is fantastic, to be able to do so!Give my love to my cousin, "mormor" Solveig, too! Best wishes, and love to all of you from Torill in Bergen.

From:	torillhammer@c2i.net
Date:	Tue Sep 30 22:52:32 2003
Message:	Hello, Tina and all of you!

From:	JUDITHSWEEN@AOL.COM
Date:	Tue Sep 30 13:57:33 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie,Keep up the good work.we are all so proud and happy for you.All our love from Chicago...Mighty-Max's Granny

From:	j.bawden@mpssociety.co.uk
Date:	Tue Sep 30 13:22:16 2003
URL:	http://www.mpssociety.co.uk
Message:	Dear Padraic and Tina It is great news that Sophie is doing so well, we all continue to think of you. It was a real boost to come back from holiday to this news. Jeff

From:	Kelly Chandler
Date:	Tue Sep 30 10:11:05 2003
Message:	What superb news, well done Sophie you are a little fighter. Love to you all.

From:	Naomi Shammas
Date:	Tue Sep 30 09:09:24 2003
Message:	I am very glad to hear your operation was a success. Lots of love Naomi

From:	Angela
Date:	Mon Sep 29 21:31:26 2003
Message:	Hi Sophie, I'm Rachels' Mum. When I told her about you and Max, she sent you both a message with her love. Keep getting better! Love Angela

From:	Rachel
Date:	Mon Sep 29 20:44:00 2003
Message:	Dear Sophie I hope you get beter soon lots of love from Rachel (Age 7) xxxxx

From:	PD, Sheetal and Divyani
Date:	Mon Sep 29 11:38:16 2003
Message:	Great news. Hope things continue in this positive light.

From:	David Coulby
Date:	Mon Sep 29 11:45:24 2003
URL:	http://www.coulby.net
Message:	Amazing, what a tremendous little lady to battle so well. Overwhelmed. Dave

From:	Sue Sexton
Date:	Mon Sep 29 08:30:01 2003
Message:	Fantastic news! You must have been so thrilled on Friday - Sophie is an amazing little girl. I hope the news continues to be as positive over the coming weeks.

From:	Aarti, Dipak, Karishma & Dilan
Date:	Sun Sep 28 22:02:31 2003
Message:	Dear Sophie, What great news!! We're really thrilled for all of you. I'm sure you will see Amy very soon and maybe you can have some chocolate cake to celebrate.... What d'you think Mum ?!?

From:	Max's G-Pa J.
Date:	Sun Sep 28 22:39:30 2003
Message:	Go Sophie Go!!!

From:	Beth - Max's Aunt
Date:	Sun Sep 28 05:46:45 2003
Message:	Way to go Sohpie!!!! I am so excited for all of you. I will continue to pray for your beautiful daughter and the rest of your family.

From:	kellywaddell@hotmail.com
Date:	Sat Sep 27 21:30:47 2003
URL:	http://www.geocities.com
Message:	Congratulations Sophie!!! You are such a little fighter. Keep up the good work sweetie. We are all praying for you!

From:	arhimes@msn.com
Date:	Sat Sep 27 20:18:45 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	Yeah!!!!!!!!!!!!!! I don't mind saying that I am a pessimist and that I really had my doubts when I started seeing those cell counts rising so fast so I am doubly thrilled to hear your fantastic news!!! I am so happy words can't express it but my heart is filled with joy. Go Sophie. Love, Anne

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Sat Sep 27 18:56:30 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	YEAH SOPHIE!!!!!! I am so happy for you! Mom and Dad enjoy this wonderful news! We all need all of the good news we can get! 100% engrafted! WOW! Love, Jennifer & Allison

From:	max's cousin jenny
Date:	Sat Sep 27 18:05:21 2003
Message:	GREAT JOB SOPHIE,YOU ARE ONE TOUGH LITTLE COOKIE. THINKING OF YOU IN CHICAGO.

From:	Max's Aunt Dana
Date:	Sat Sep 27 15:42:53 2003
URL:	http://www.mighty-max.com
Message:	WAY TO GO SOPHIE!!! You are a champ ... SUPER GIRL!!! We continue to pray that your road to recovery will be smooth! A big hug and kiss to you and mom and dad from your friends in the US!

From:	judthsween@aol.com
Date:	Sat Sep 27 14:59:24 2003
Message:	Oh Sophie, You beautiful girl.I knew you would get that 100%.I am so happy for you and your family!!!Keep going and stay strong.Sending tons of hugs and kisses from the USA--- Mighty-Max's Granny

From:	Ramzi
Date:	Sat Sep 27 06:17:42 2003
Message:	Fantastic news! Fingers still crossed for you, Sophie.

From:	Mike (Max's Dad)
Date:	Sat Sep 27 05:14:18 2003
URL:	http://www.mighty-max.com
Message:	Way to go Sophie!!! You are amazing. You are a doll. You are an inspiration. Lots of love from Max and family here in Minnesota.

From:	Alison & Peter, Ellie & Stacey
Date:	Sat Sep 27 00:28:40 2003
Message:	Sophie, We are overjoyed to hear the news everyone has been waiting for. You really are an amazing girl. Love to you all.

From:	desmcnaboe@eircom.net
Date:	Sat Sep 27 00:14:14 2003
Message:	Tina and Padraig At long last found the website Great news about Sophie I am praying hard these days for Sophie Just finished novena to P. Pio Sophie was my special intention will continue with the prayers not too good on the internet Special love to Nora Pax Uncle Des

From:	torillhammer@c2i.net
Date:	Fri Sep 26 21:05:25 2003
Message:	Dear Tina, and all of you! I am so glad for the positive news I read about Sophie this Friday evening! Congratulation to all of you!Love from Torill in Bergen.

From:	Max's Aunt Nancy
Date:	Fri Sep 26 21:56:50 2003
Message:	Sophie, you're a beautiful little girl. I love the wonderful news! Congratulations to you.

From:	Lisa Post ltjpost
Date:	Fri Sep 26 20:39:07 2003
Message:	Hip Hip Hooray!!! What fantastic news! What a blessing! I will continue to pray for Sophie to continue to do well with a smooth recovery from the transplant process. God Bless!

From:	Kate
Date:	Fri Sep 26 20:34:11 2003
URL:
Message:	That's EXCELLENT NEWS. Well done Sophie!!! We're so happy for you all. Kate & Tony xxxx

From:	Angela Docherty
Date:	Fri Sep 26 20:25:13 2003
Message:	Congratulations Sophie! Brilliant news! Love Angela

From:	Max's G-Pa J.
Date:	Fri Sep 26 20:57:31 2003
Message:	Just read the latest news - good girl Sophie - 100% engraftment is really good news. Keep up the good work and tell your mom and dad Hi!!!

From:	kellywaddell@hotmail.com
Date:	Fri Sep 26 20:08:07 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Glad to hear that Sophie is doing so well. I know it was great to hear from the donor. We just found out the name of Caleb's donor a couple of months ago and can't wait to finally meet him face to face. Hopefully that will happen.

From:	Kelly Chandler
Date:	Fri Sep 26 16:54:03 2003
Message:	Sending love to you all, you are a strong family. The poem is beautiful, I nearly cried at my desk!!! Its so good to hear that Sophie is continuing to do well.

From:	Vivien
Date:	Fri Sep 26 17:50:36 2003
Message:	Happy to know that the news is still good and Sophie is doing well. Best wishes to you all.

From:	Max's Cousin Jenny
Date:	Fri Sep 26 15:55:10 2003
Message:	Beautiful Sophie Beautiful smile Beautiful poem

From:	Kate
Date:	Fri Sep 26 10:40:22 2003
URL:
Message:	Hi to all. We're so pleased that the news is still looking good. Sophie is a real star. The poem is lovely. Kate & Tony xxx

From:	Margaret Ciacciarelli
Date:	Fri Sep 26 00:44:30 2003
URL:	http://www.Mighty-Max.com
Message:	Good girl Sophie! Grow those WBC! We worried too when Max's cells started growing. We will pray that you are 100% donor! Sorry to hear the bloos test got lost, how incredibly frustrating.

From:	Max's G-Pa J.
Date:	Thu Sep 25 23:08:43 2003
Message:	Keep on going Sophie - keep on goin'.

From:	hiten_solanki@northdoor.co.uk
Date:	Thu Sep 25 11:50:04 2003
Message:	Glad to hear all is going well.

From:	Mike Ciacciarelli (Max's Dad)
Date:	Thu Sep 25 01:08:47 2003
URL:	http://www.mighty-max.com
Message:	Sophie you are a CHAMP! Your parents should be so proud of you! Don't worry about if the counts are "good" yet. Celebrate your girl's progress! Tell her she's doing wonderful. She is a beautiful girl and is going to come through this very strong. Way to go! Sending love from Max and our whole clan in Minnesota USA!

From:	Jan, Pat, Zoe and Joy,
Date:	Wed Sep 24 23:04:22 2003
Message:	Sophie, you obviously take after your Mum, Dad and big Sister - just look at those growth rates, you are quite certainly a superstar. Keep up the good work. Fingers crossed for results day. Love From us.

From:	kellywaddell@hotmail.com
Date:	Wed Sep 24 22:17:17 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Keep up the good work little Sophie! You are doing so good. Make sure those doctors stay on top of the fluid you are retaining though. That is what led to alot of Caleb's problems. We're still praying!!!

From:	Anneleen (Yasmine's mom)
Date:	Wed Sep 24 21:56:25 2003
URL:	http://www.verbinnen.net
Message:	Wonderful, princess! You are doing a great job. We 're thinking of you a lot. Thank your mom and dad for adding our Yasmine by your friends with Hurler. We are all one big family, aren't we. Lots of hugs & kisses from Belgium. Anneleen, Alex & Yasmine.

From:	Max's G-Pa J.
Date:	Wed Sep 24 22:55:58 2003
Message:	Hey Sophie, keep those numbers up - and stay away from that GVH stuff - it is nasty. We are pulling for you - and praying for you too. Take care - God Speed.

From:	joan o'leary
Date:	Wed Sep 24 22:46:33 2003
Message:	sophie, we are all praying very hard for you lots of love from all your aunties in Ireland.

From:	jackie.oconnor@gs.com
Date:	Wed Sep 24 18:46:21 2003
Message:	Hi all, Am stuck in Frankfurt at the moment so cannot call the hospital easily. Am praying for Sophie and keeping up to date with the website. Really enjoyed seeing Amy, Padraic and Nana on Sunday. Hope to see the whole family together again soon. Love Jackie

From:	JUDITHSWEEN@AOL.COM
Date:	Wed Sep 24 14:02:58 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie,We are all so proud and happy for you!Keep up the good work growing those new cells-we are praying daily for you and your family.I know you will get that 100%!!! Love from the States---Mighty-Max's Granny

From:	Lisa Post ltjpost
Date:	Wed Sep 24 11:37:54 2003
Message:	I'll say a prayer that Sophie's counts are definitely "Super Sophie" growing super fast DONOR cells!!!!

From:	Angela Docherty
Date:	Tue Sep 23 22:15:16 2003
Message:	I love the new photos of Sophie. I am hoping and praying along with everyone else that the new cells are donor cells. Keep smiling Angela xxx

From:	Eimearandsimon@eircom.net
Date:	Tue Sep 23 21:17:29 2003
Message:	Hi Sophie You are a strong little girl and a beauty too! Our love to you and wishing you better soon. Love to Padraic, Tina and Amy. Keep that smile - lots of love Eimear and Simon in Dublin

From:	Mike (Wrestler)
Date:	Tue Sep 23 20:32:23 2003
Message:	Pleased to see the Sophie is doing well, will keep my fingers crossed for more good news in the future. Mike.

From:	kellywaddell@hotmail.com
Date:	Tue Sep 23 20:58:53 2003
URL:	http://www.geocities.com/calebwaddell
Message:	It's good to hear Sophie is doing so well. We'll be praying that those counts stay up and of course, for 100% engraftment.

From:	Justin Grainger
Date:	Tue Sep 23 18:16:00 2003
Message:	Great to hear everything is going well. It's really promising to see those big smiles in the photos. Best regards for the future Justin

From:	DOOGA817@EARTHLINK.COM
Date:	Tue Sep 23 16:42:49 2003
Message:	Glad to see Sophie is feeling pretty good. We will be thinking of her in chicago. Maxs cousin Jenny

From:	Kelly Chandler
Date:	Tue Sep 23 14:34:40 2003
Message:	I love the new hairdo, Sophie is gorgeous regardless of what hairdo she has. I'm so pleased to hear that everything is coming along and that Sophie is still a happy little lady. I pray everyday for the future xxxx

From:	Dipak, Aarti, Karishma & Dilan
Date:	Tue Sep 23 09:43:07 2003
Message:	WOW ! You go girl ! It's great to hear that your counts are rising. No doubt that Chocolate cake from the other day helped things along ! Sounds like you might have to bake more regularly Mum ;o) Keep well and give our love to your Mum, Dad and Big Sis Amy for us. Lots of love, Dipak, Aarti, Karishma and Dilan P.S. I didn't think you could look any sweeter, but that new hairdo works a treat !

From:	sue_sexton@northdoor.co.uk
Date:	Tue Sep 23 08:29:10 2003
Message:	Glad to hear that everything has gone so well to date - I logged on to the website this morning with some trepidation after returning from holiday not really knowing what to expect. However, I just hope that the good progress continues - Sophie certainly looks very bright in the latest photos. I will continue to check the website on a regular basis now for more news.

From:	Max's Aunt Dana
Date:	Tue Sep 23 04:07:48 2003
URL:	http://www.mighty-max.com
Message:	Hi Sophie! You are indeed the cutest baldie EVER! Even cuter than your new hairdo is your BEAUTIFUL SMILE. The spirit in a child is so amazing ... to show such a wonderful smile despite all that you are going through. You are amazing. Keep up the great work! Will check in on you again soon. God bless you!

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Tue Sep 23 03:06:29 2003
Message:	Sophie! I'm so sorry you have a rash, how uncomfortable! I love hearing that Sophie is doing well! I continue to check on and pray for you! Love, Jennifer & Allison

From:
Date:	Tue Sep 23 03:04:33 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie, Keep up the good work growing those WBC'S.I hope your rash is better soon.Sending prayers and hugs from the USA. Love,Mighty-Max's Granny

From:	dooga817@earthlink.net
Date:	Mon Sep 22 15:13:20 2003
Message:	Hi Sophie and parents, I'm Maxs cousin Jenny and just wanted ypou to know I'm thinking of you and praying for you. HUGS AND KISSES

From:	kellywaddwell@hotmail.com
Date:	Mon Sep 22 16:10:20 2003
URL:	http://www.goecities.com/calebwaddell
Message:	lol Caleb used to love to show off for all of the doctors and nurses too. These babies just know they are irresistable. We are praying that those new cells are donor cells and that the itching stops soon! Keep up the good work Sophie!

From:	arhimes@msn.com
Date:	Mon Sep 22 14:18:16 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	Dear Sophie, What a beautiful baldie you are!! I am sorry you are itching but I am glad that it is probably a sign of new cells. Now if they would just behave themselves in their new home. Hope things continue well. Love, Anne

From:	Alison, Peter, Ellie & Stacey
Date:	Mon Sep 22 11:19:00 2003
Message:	Sophie, you look gorgeous in your new pictures, and as happy as always. We're going to try your diet of Wotsits and chocolate cake, if that's how good you look on it! Keep up the good work, we all think about you all the time. Love to your Mum, Dad and Amy.

From:	Lisa Post ltjpost@cox.net
Date:	Mon Sep 22 03:35:16 2003
Message:	Sorry about the rash. I hope that's a good indication that donor cells are growing! I hope the creams help her discomfort. Thank you so so so so so much for posting Max updates! I'm praying that this time off the vent he stays off the vent! May God bless both Sophie and Max as well as all the Hurler babes!

From:	Jan, Pat, Zoe, Joy and Winnie.
Date:	Sun Sep 21 22:12:40 2003
Message:	We've just been looking at the latest pics and Sophie you are looking better than ever. We love the new hairdo and can't believe how good that smile is. Great news about the new cells - keep on growing. Looking forward to tomorrow. Fingers crossed (all 48 of them ;-)) for the next few days. Love from us lot.

From:	Margaret Ciacciarelli
Date:	Sun Sep 21 22:36:29 2003
URL:	http://www.Mighty-Max.com
Message:	Sophie, Glad to hear about your WBC. Those creams will really help the GVHD - they helped Max a lot. Your new hairdo is beautiful. Thanks for posting Max's update!

From:	Max's G-Pa J.
Date:	Sat Sep 20 23:45:05 2003
Message:	Hi Sophie, Amy, Padriac, Tina, Glad to hear you are doing well - probably doing better than your mom and dad!!! I love chocolate cake too - and chocolate ice cream. Tell your dad thanks for posting Max's latest update - Max's web-mistress is caught in the hurricane somewhere south.

From:	Mike (Max's Dad)
Date:	Sat Sep 20 22:41:10 2003
URL:	http://www.mighty-max.com
Message:	Hmmm . . . were you REALLY asleep for the nappy? From one Hurler Dad to another, I can admit to you that I've been guilty of sleeping on the job too. No worries. Today my mother-in-law and I are checking in, and we LOVE THE PICTURES! Sophie is so beautiful. Glad to hear she is still eating cake. We love the updates, we love the progress, WE LOVE SOPHIE! Go little sweetie go!

From:	Kate
Date:	Sat Sep 20 18:58:15 2003
URL:
Message:	Hi Padraic and Tina Sophie is absolutely beautiful and looks so happy. She is such a pretty girl. I'm glad everything seems to be going along the right lines and fingers crossed for the next few days. love Kate & Tony xxxx

From:	torillhammer@c2i.net
Date:	Sat Sep 20 10:59:13 2003
Message:	Dear Tina, and all of you! I have just seen the new pictures of Sophie, and she looks beautiful! I read and read, from day to day, and I am glad to see, that things until now, are going so well! You are all in my thougths! Give my love to "mormor" Solveig! I have spoken to aunt Ellen-Karin on the phone, a few days ago, and as you surely know, she and K�re are following Sophie`s Website too! Have a good Saturday all of you!Love from Torill in Bergen!

From:	Kelly Waddell
Date:	Fri Sep 19 21:59:36 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Bald is beautiful! lol You are so precious. Keep knocking down all the little roadblocks Sophie and show them what you are made of. We're keeping you in our prayers and so thankful that you are doing so well.

From:	Lisa Post ltjpost@cox.net
Date:	Fri Sep 19 16:28:08 2003
Message:	Hi Sophie, you little cutie pie! I'm sure you are the cutest hairless transplant babe that hospital will ever see! It'll all grow back..and boy, will it! I am praying for you that your infection is clearing and your donor cells are growing!

From:	Judie Sweeney
Date:	Fri Sep 19 14:52:51 2003
Message:	Dear Sophie, Hope your rash gets better soon.I can't wait to see your new haircut.Keep growing those new cells.Praying for you daily...Mighty-Max's Granny

From:	Beth Micucci
Date:	Fri Sep 19 05:59:47 2003
URL:	http://mighty-max.com
Message:	Fight your infection and grow your new cells. We are praying for you in Chicago. I can't wait to see you with your new hairdo!

From:	Kelly Waddell
Date:	Thu Sep 18 21:16:28 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Keep up the good work Sophie. Fight those infections and get those cells growing. I'm sure you are a beautiful little girl, with or without hair. And believe me, if you have to take the same medications Caleb took, you'll soon have more hair than you ever want!!! lol

From:	Mike (Mighty Max's Dad)
Date:	Thu Sep 18 16:43:09 2003
URL:	http://www.mighty-max.com
Message:	Hey Sophie! Sounds like the clippers might have to come out soon to help with the hairdo. Don't worry it'll all grow back. Keep on growing cells and doing well. We're so proud of you!

From:	michelle.flaherty@boimail.com
Date:	Wed Sep 17 11:01:58 2003
Message:	Hi Sophie, In our prayers and thoughts - get well soon. Love John, James & Michelle

From:	kellywaddell@hotmail.com
Date:	Tue Sep 16 20:51:37 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Glad Sophie's days are going well. We are still praying for her!

From:	Max's G-Pa J.
Date:	Tue Sep 16 18:17:29 2003
Message:	Hi Sophie, GROW CELLS GROW!!! (Tell Your dad hi.)

From:	Ramzi
Date:	Tue Sep 16 16:12:33 2003
Message:	Guys, just wanted to let you know we're thinking of you every day. R, A, P and N.

From:	Lisa Post ltjpost@cox.net
Date:	Tue Sep 16 00:12:12 2003
Message:	GROW CELLS GROW!!!

From:	www.wiley.williams@Tesco.net
Date:	Mon Sep 15 20:01:47 2003
Message:	Dear T,P,A & S. Sorry about the last message Max was just helping!!!!!. It is great to hear Sophie is doing so well, we know this week will be hard for her so we hope she is still smiling. Thinking of you all, love Cornelia, David, Max and Isabella. XXXX

From:	www.wiley.williams@Tesco.net
Date:	Mon Sep 15 18:50:55 2003
Message:	Dear T,P,A & S

From:	john.curtin@pjhegarty&sons.ie
Date:	Mon Sep 15 13:53:40 2003
Message:	Padraig&Tina, Just a short note to let you know that we are all thinking of baby Sophie,and that you are all in our prayers. John,Bernie,Sean,Niamh & Cormac

From:	Kate
Date:	Sun Sep 14 23:05:19 2003
URL:
Message:	Hi Sophie. Glad the wotsits are still going down nicely. Have you had any chocolate cake yet (don't let mummy & daddy have any!)? Thinking of you all. Kate & Tony xxx

From:	alisonj_knott@yahoo.com
Date:	Sun Sep 14 22:28:00 2003
Message:	Tina, Padraig, Amy & Sophie We are thinking of you all every day. It sounds as though Sophie is doing really well so far, it must be the Wotsits. Love from us all, Alison, Peter, Ellie & Stacey

From:	Dana Slevin
Date:	Sun Sep 14 02:10:47 2003
URL:	http://www.mighty-max.com
Message:	Hi beautiful Sophie! I am Mighty Max's Aunt Dana and wanted to send my love and prayers as well as those of my family. My husband and I are currently in your beautiful country and send you hugs from not so far away. We will continue to check in on you and pray for those new cells to grow, grow, grow! God bless you and your family!!! Dana, Geoff, Anne, Emily, and Veronica Slevin

From:	Mike (Max's Dad)
Date:	Sat Sep 13 22:48:31 2003
URL:	http://www.mighty-max.com
Message:	Wotsits??? We don't have those over here. Max lost his appetite finally during those early days too. But he didn't stop eating for a while. Keep it up with the cheesy puffs, anything to keep that GI system working a little bit goes a long way. Glad to hear that you guys are hanging in there. We're rooting for you! Go Sophie Go!

From:	Angela Docherty
Date:	Sat Sep 13 23:23:20 2003
Message:	Padraic, Tina, Amy & Sophie, I think of you every day and am so impressed at how strong you are. I know you don't always feel that strong, but I am sure that you ALL have got what it takes to get Sophie well again. Love from me and my two girlies (Rachel & Elizabeth) to you and your two girlies. Angela xxx

From:	Kelly Waddell
Date:	Fri Sep 12 20:07:34 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Just checking in to see how little Sophie is doing, before I leave my computer for the weekend. Stay strong angel girl and gets those counts to rising! You are in our prayers.

From:	Jenny Birmingham/jennybirm@comcast.net
Date:	Fri Sep 12 16:08:19 2003
URL:	http://www.missmollyb.com
Message:	Hey, Sophie! We'll start praying for those cells to grow, grow, grow! stay strong, little one... you are such a cutie!

From:	Vivien
Date:	Fri Sep 12 13:03:40 2003
Message:	I'm pleased to read that the op went according to plan and hope everything continues do well. I love the new photos - Sophie and her sister look like happy children. My thoughts are with you.

From:	Aarti, Dipak , Karishma and Dilan
Date:	Fri Sep 12 10:05:53 2003
Message:	Well done Sophie !!!! Congratulations on the transplant ! Looking forward to seeing the counts go up and up and up in the coming weeks ! Stay strong. I think some Chocci cake is definately in order !! Time to get baking Tina ;o) Take care all.... Love The Dav�'s

From:	Ellie's Gran and Grandad
Date:	Thu Sep 11 23:41:41 2003
Message:	Hello Sophie, I saw the lovely pictures of you and your sister Amy, and Iv'e heard all about you from Amy's friend, Ellie, who is my grandaughter {and Stacey}. I am just so pleased that the day has come and gone at last, and I look forward to hearing the next good news from Alison. xxx

From:	Katie Sweeney csween2@luc.edu
Date:	Thu Sep 11 23:07:59 2003
URL:	http://www.mighty-max.com
Message:	I'm Mighty Max's aunt Katie and I just wanted to say that I am praying very hard for Sophie. I hope that everything goes well.

From:	Mighty Max's Dad
Date:	Thu Sep 11 22:39:55 2003
URL:	http://www.mighty-max.com
Message:	Sophie, Over here, nappies are short rests. But I understand with you it's diapers! Sorry about the skin irritation, but know there are plenty of creams and medicine to help you. Please tell your mum and dad to have faith in the doctors and in the medicines. Max sends a kiss from his room in Minnesota and we are all so proud of your progress!

From:	Shawn Coble/selboc@aol.com
Date:	Thu Sep 11 21:16:55 2003
URL:	http://www.caringbridge.org/nc/reesecup
Message:	All Hurler babies have a special place in my heart but when I saw Sophie's picture, it took my breath away. She is so adorable... she reminds me of a baby doll. I, unfortunatly, lost my Hurler baby this past March. I still love to check on my Hurler friends... I will keep Sophie in my thoughts and prayers - and you, too!!! God bless and God's Speed little Sophie!!!

From:	Lisa (Peeps)
Date:	Thu Sep 11 20:46:23 2003
URL:	http://www.mighty-max.com
Message:	Hi Sophie, Just sending you best wishes for a healthy recovery. I am Max's Aunt and I want to thank your family for all of their prayers and hope for him. I am sending you all my love too. Good luck and grow cells grow!!1

From:	arhimes@msn.com
Date:	Thu Sep 11 19:15:46 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	Dear Sophie, I am so glad to hear that you got your BMT yesterday. Happy "Birthday" !!! I hope they grow in no time and that you do just great. Love from America, Anne

From:	brneyedgrl617@aol.com
Date:	Thu Sep 11 18:15:38 2003
Message:	Hi Sophie - I'm Caleb's grandmother and he had his transplant a year ago in June. You and your family will be in my prayers. I will keep up with your progress & know you will be another successful transplant!! Stay strong & keep faith in God.

From:	judithsween@aol.com
Date:	Thu Sep 11 17:52:33 2003
URL:	http://www.mighty-max.com
Message:	Hi Sophie,Glad to hear that the transplant went well.I am Mighty- Max's Granny and I am praying for you everyday.GROW CELLS GROOOOOW!!!!!!

From:	kellywaddell@hotmail.com
Date:	Thu Sep 11 17:18:25 2003
URL:	http://www.geocities.com/calebwaddell
Message:	Hi Sophie and family. Just saw your link on Max's page. You are one beautiful little girl!!! You will be in my prayers. My little boy, Caleb, has Hurler also and was transplanted on June 21, 2002. He's doing great and you will be too. :)

From:	chris / chris@evl.uic.edu
Date:	Thu Sep 11 16:39:22 2003
Message:	Hi Sophie! I am Max's friend and webmaster. Congratulations on your transplant!! I hope that those cells grow and grow swiftly and that before you know it, you will be counting the days when you go home! Take care, Chris

From:	G-Pa J.
Date:	Thu Sep 11 16:19:29 2003
Message:	Hi Sophie, I'm Max's granpa - writing across the big lake to wish you good luck with the transplant. You're a cutie!!!

From:	Jodi Heiss (neighbor of Mighty Max)
Date:	Thu Sep 11 15:22:37 2003
Message:	Happy Re-birthday Sophie! I hope your cells grow quickly. We are friends of Mighty Max and just wanted to know that we are cheering and praying for you from Chicago!

From:	torillhammer@c2i.net
Date:	Thu Sep 11 12:12:48 2003
Message:	Dear Tina, and all your nearest family! I am glad to have read today, that the transplant now is done! I wish you all the best for the following days, and hope that the cells will grow, grow and grow, and do Sophie better day after day! Good luck to all of you! The new pictures are nice, like the other pictures, and you have two beautiful girls! Give my love to "mormor" Solveig! Best wishes, all love to all of you from Torill in Bergen.

From:	jackie@virgo-technologies.com
Date:	Thu Sep 11 11:27:15 2003
URL:
Message:	Well Done to Uncle Alan and All his Efforts for Great Ormand Street Hospital. Hoping everything goes well with the Marrow transplant. We are keeping you all in our thoughts and Prayers Love & Best Wishes Jackie, Jonn & Baby Daisy

From:	Kate
Date:	Thu Sep 11 11:13:35 2003
URL:
Message:	It's great to see the new photos - congratulations and well done to Uncle Alan!!! Padraic and Tina, you have two very pretty little girls. With love and best wishes and fingers crossed for the next few days/weeks. Kate & Tony xxx

From:	djharding@aegislimited
Date:	Thu Sep 11 10:54:14 2003
Message:	Dear all, Hope everything is going well and wish you the best of luck. I am looking at the site on a daily basis. Derek

From:	Beth Micucci (Mighty Max's Aunt)
Date:	Thu Sep 11 04:43:55 2003
Message:	Happy Tansplant Day!!!! I will pray that Sohpie's new cells take hold and GROW. Stay strong and know that people all over the Chicago area are praying for your beautiful little girl.

From:	ltjpost@cox.net
Date:	Thu Sep 11 03:37:49 2003
Message:	Oops, sorry, I forgot below to mention my name! I'm Lisa Post.

From:	ltjpost@cox.net
Date:	Thu Sep 11 03:36:44 2003
Message:	Hi Sophie and family!!! Congratulations on the start of a new life for Sophie!!!! I will be praying for her successful engraftment and I won't settle for anything less than 100%!!! I have a special little Hurler girl in my life too and I have come to know so many families. These kids are so precious to me...they are beautiful angels. Sophie is adorable and I will be checking on her often! God Bless!

From:	Yasmine, Alex & Anneleen from Belgium (Europe)
Date:	Wed Sep 10 22:15:01 2003
URL:	http://www.verbinnen.com
Message:	Hi Sophie, Yasmine is our 20 month old daughter. She has Hurler too. On july 31st she got her transplant. Today she is at day +41 and she is doing great! We all keep our fingers crossed for you and we are sure you can do it!! Like Alex wrote on our website: "grow cells grow!!!" You're in our thoughts always. Your Hurler friends from Europe, Alex & Anneleen & little Yasmine

From:	Max Ciacciarelli
Date:	Wed Sep 10 21:12:31 2003
URL:	http://www.Mighty-Max.com
Message:	Go Sophie go! Grow cells grow (peacefully). Happy re-birthday!

From:	Mike Ciacciarelli & Grannie Sweeney
Date:	Wed Sep 10 16:58:44 2003
URL:	http://www.mighty-max.com
Message:	Go Sophie Go! Today is a new beginning for you and we want you to know that we are thinking of you over here in the states. Your family has been wonderfully supportive of our little Max so we know you are in good hands. Just try to let the cells do their work and grow grow grow! Good luck with everything.

From:	jean.bernie@btinternet.com
Date:	Wed Sep 10 14:42:39 2003
Message:	Dear Tine,Padriac,Amy & Sophie Bernie & i would like to wish you a very speedy recovery & back to good health very soon. You are on our minds in our thoughts & prayers See you all soon love Jean & Bernie xxxxx

From:	Sally
Date:	Wed Sep 10 13:02:35 2003
Message:	Dear Tina, Padraic, Amy & Sophie You are all constantly in my thoughts, I'm checking progress via the website. I hope everything goes well and look forward to seeing you all soon. Let me know if I can do anything to help. Love Sally

From:	Anne & Dave
Date:	Wed Sep 10 09:59:56 2003
Message:	All the very best Sophie on this special day. We are thinking of you, your sister Amy, your daddy & mammy. Best wishes Anne & Dave

From:	Aarti, Dipak , Karishma and Dilan
Date:	Tue Sep 9 22:37:52 2003
Message:	Dear Sophie, Good Luck for tomorrow. We're all thinking of you. Keep smiling ! Love Aarti, Dip, Karishma and Dilan xxx

From:	Jan
Date:	Tue Sep 9 19:26:59 2003
Message:	Thinking about you lot all the time at the moment. I'm looking forward to seeing you all again soon. I can't believe that tomorrow is tomorrow but am looking forward to a few weeks time when things will be better. Love from Jan.

From:	Kelly Chandler
Date:	Tue Sep 9 13:42:41 2003
Message:	Hi Sophie, Padriac, Tina and Amy Sophie is such a gorgeous little girl, I have been checking your website every day for progress reports. My thoughts and love are with you all. xxxxx

From:	Angela
Date:	Tue Sep 9 13:40:29 2003
Message:	Padraic & Tina, Thinking of you all. Good luck for tomorrow and the next few weeks. We have been praying for Sophie at home - especially for protection from infection after the transplant. Love Angela xxxx

From:	Vivien Calkin
Date:	Mon Sep 8 16:31:55 2003
Message:	Dear Sophie & family I wish you well for your important day on Wednesday. My thoughts are with you all. Best wishes Vivien

From:	Kate & Tony
Date:	Mon Sep 8 13:15:12 2003
URL:
Message:	Hi Padraic and Tina Just to let you know that we are checking daily for updates on Sophie's progress. Will be thinking of you all on Wednesday. Best of luck. Kate and Tony

From:	alisonj_knott@yahoo.com
Date:	Mon Sep 8 11:09:50 2003
Message:	Sophie, Amy, Tina ad Padraic, It was great to see Amy having fun at the party, and I hope Sophie got to taste a little of the cake, even if it wasn't chocolate flavour! We've been watching the website every day, and we'll all be crossing fingers for Sophie on Wednesday, we've been missing her smiles. All our love, Alison, Peter Ellie and Stacey

From:	Ramzi
Date:	Mon Sep 8 10:34:21 2003
URL:
Message:	Sophie Everyone here is keeping their fingers crossed for you. My daughter loves looking at the pictures of you, looking forward to seeing some more soon after your op. Padraic, if there's anything we can do, you know how to get hold of me - don't hesitate. Ramzi, Amanda, Patrick and Naomi

From:	Joy
Date:	Sun Sep 7 15:14:51 2003
Message:	Lots of love to Sophie, Amy, Tina and Padraic. (PS: I've never sended a message to someone before ... mum typed it for me)

From:	Dipak, Aarti, Karishma n' Dilan
Date:	Sat Sep 6 22:45:28 2003
Message:	Hi Tina ! We all had a great time at Amy's birthday party today. Of course we missed you and Sophie not being there ! Hope you enjoyed the Barbie cake as much as we did ;o) Hmmmm ! Amy had a really fun time - I'm sure Padraic's already shown you the video. She was really excited and spent the whole time grinning and giggling with Karishma. We all hope Sophie is doing well. We're thinking of her and praying for her speedy recovery from the transplant. Please do give us a shout if there's anything we can do to help out ! It's the first time I've visited the website and the pictures of Sophie are really cute - you've definately caught her character ! Anyway, I'm sure we'll speak to you soon. In the meantime I'll keep tabs on Sophie's progress through the website. Take care. Lots of love, Aarti

From:	Torill
Date:	Sat Sep 6 20:38:30 2003
Message:	Dear Tina, and the rest of the family! It is Torill in Bergen, mormor Solveig`s cousin, who is writing these lines! I have got the address from aunt Ellen- Karin, and have just seen pictures of Sophie on her Web side! She looks wonderfull, and I think of all of you, have read what is written about her illness, and feel sorry for what Sophie, and all of you, have to go through! Thank you for putting the whole thing into internet, so that I, living so far away, can be able to follow what is going on from time to time! I read that just from today, there will be a change, in not being able to live like a family, in the way you until now have done, because of Sophies operation, but I know you are strong, and will be able to manage, what will come, in the days, the weeks, and also the mounths from now! With this, I will wish you all the best, for you and little Sophie! I will often think of you, and also ask you, to give my love to Solveig, in this difficult time! Love and best wishes from Torill in Bergen.

From:	Anne and Dave
Date:	Sat Sep 6 20:37:09 2003
Message:	Hi Sophie, Amy, P�draic & Tina Sophie, I love the photos of you on your website. Your Nana Nora also keeps me informed of your progress. She is so proud of you, your sister Amy, Mammy & Daddy. You are a very brave wee girl and we wish you well with your forthcoming transplant. Thinking of you all. Love Anne & Dave

From:	Joan O'Leary (Sophie's Great-Aunt)
Date:	Sat Sep 6 20:35:10 2003
Message:	Hello to all the family, I keep in touch with all Sophie's news on the internet. I am thinking of you all at this difficult time and you are all in my prayers, Love from Auntie Joan

From:	torillhammer@c2i.net
Date:	Sat Sep 6 12:55:37 2003
Message:	Dear Sophie! This is mormor Solveig`s cousin writhing to you from Bergen in Norway! I am following what is going on with you from day to day through your web-site,and will wish you the best for wednesday the 10th of September! I am thinking on you and your family, and will wish you all: "Good luck! Love from Torill, and the rest of my nearest family in Bergen.

From:	Kate & Tony
Date:	Fri Sep 5 13:53:41 2003
Message:	To Sophie - you are in our thoughts and prayers. To Padraic, Tina and Amy - keep strong - we are all thinking of you. Kate & Tony xxx

From:	Dipak, Aarti, Karishma n' Dilan
Date:	Fri Sep 5 08:15:58 2003
Message:	Hi Sophie ! Congratulations on the new tooth ! Aarti and I, and your little friends Karishma and Dilan are all thinking of you...good luck with the chemo....I'll keep Aarti and the kids posted on all your progress via the website ! Lots o' love sweetheart !

From:	The Ciacciarelli Family
Date:	Thu Sep 4 21:29:19 2003
URL:	http://www.Mighty-Max.com
Message:	That face visor scared us too! To think the nurses wear all that protection against the chemo our babies are injected with! Best wishes for an event-free transplant. We are pulling for you.

From:	Mike (Wrestler)
Date:	Thu Sep 4 17:00:27 2003
Message:	Sophie, I really hope everything goes well for you, will be thinking of you all next Wednesday. Padraic, Give me a call if you need any help and stay strong I am sure everything will be fine. Will keep a check on the site.. Good luck. Mike

From:	Karen (Isabella's mom)
Date:	Tue Sep 2 23:11:23 2003
URL:	http://www.caringbridge.org/ia/isabella
Message:	Sophie is sooo cute! My daughter is about her age, and has Hurlers as well. We are friends and fans of Mighty Max. Bella is Day +39 and counting. Good luck going into transplant, I'll check on Sophies progress!

From:	Ramzi, Amanda, Patrick and Naomi
Date:	Tue Sep 2 19:11:29 2003
Message:	Sophie, Good luck with your bone marrow transplant. We are thinking of you and all the family. Love from all of us.

From:	jchick@ncia.net
Date:	Sat Aug 30 02:09:39 2003
Message:	Sophie--I am Max's Grandma Chick. Thank you for checking in on Max. I am sure you are anxious to get your new cells. You are beautiful and we are all pulling for you. Maybe when you are older you and Max can meet. Be strong.

From:	mmchick@comcast.net
Date:	Sat Aug 30 00:43:23 2003
URL:	http://www.Mighty-Max.com
Message:	We are pulling for you Sophie! Good luck with everything.

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Fri Aug 29 18:14:18 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	Hi Sophie! I am praying that everything went well with your Hickman line! Just wanted to let you know we are thinking of you! Love, Jennifer & Allison

From:	Max's G-Pa J.
Date:	Mon Aug 25 22:56:31 2003
Message:	Hi Sophie, I'm Max's grandpa - good luck with the transplant - and you are a cutie - your dad visited Max's site the other day - that's how I learned about you. Good luck with it.

From:	Beth Micucci micucci4@comcast.net
Date:	Wed Aug 20 01:56:19 2003
URL:	http://www.mighty-max.com
Message:	I will be praying for Sophie as she begins the transplant process. My nephew, Max, is 5 days past his cord blood transplant. It is a LONG road but, remember there are lots of people praying for you. Sophie is a cutie!!!

From:	JUDITHSWEEN@AOL.COM
Date:	Tue Aug 19 13:51:04 2003
URL:	http:/www.mighty-max.com
Message:	Dear Sophie and family, I will continue to keep you in my prayers as you prepare for your BMT.You are such a Cutie and I hope my grandson,Max,can meet you some day. Hugs & Kisses from across the Sea, Judie Sweeney

From:	mmchick@comcast.net
Date:	Thu Aug 14 05:35:04 2003
URL:	http://www.mighty-max.com
Message:	Sophie, You are such a little beauty! Our son Max is getting his new cells tomorrow. Wish us luck! It's been a long road to this point, and we've got an even longer one ahead. I'm sure you feel the same way. Please write to us any time if we can be supportive in any way. And thanks for writing to our guestbook and offering us such nice support from overseas. It means so much. Good luck, Mike Ciacciarelli (Mighty Max's Dad)

From:	arhimes@msn.com
Date:	Fri Aug 8 14:56:13 2003
URL:	http://www.caringbridge.org/page/andrewh
Message:	We just wanted to wish Sophie good luck with her transplant. Our son Andrew is about 2 yrs post-trans. for Hurlers. He is doing great. Stop by and say hi. Anne Boonsboro, Md. USA

From:	Dana Slevin
Date:	Thu Aug 7 00:05:50 2003
URL:	http://www.mighty-max.com
Message:	Hello Sophie and family, I am "Mighty" Max's aunt and want to wish you all the best as you start your journey. Hopefully you and Max can meet someday! You are a BEAUTIFUL girl! God bless you!

From:	Jennifer Restemayer jennmarie@bis.midco.net
Date:	Wed Aug 6 02:19:06 2003
URL:	http://www.caringbridge.org/nd/allison
Message:	I wanted to let you know that we are thinking of you and your family. I wish you all the luck in the world with Sophie's transplant! 10 out of 10 match sounds GREAT! I will keep praying! Love, Jennifer & Allison

From:	Judie sweeneyJUDITHSWEEN@AOL.COM
Date:	Tue Jul 29 05:49:52 2003
URL:	http://www.mighty-max.com
Message:	Dear Sophie and family, My grandson,Max,also has MPSI and will be having a BMT soon at Fairfiew hospital in Minnasota.I will keep you in my prayers as you begin your journey .